Personal Story
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Zak

Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant.

Recent advances in genomics testing are saving lives. Stories like Zak’s highlight why Maddie’s Vision is so focussed on funding medical research and clinical trials that will deliver answers to patients sooner.

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Jack and Hannah’s story with Aplastic Anaemia

When Jack was diagnosed with Aplastic Anaemia, he and his fiancé Hannah had never heard of the condition and weren’t sure what to expect. Tragically, Jack passed away after ...

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Rob

Rob's story: My journey with Aplastic Anaemia

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Olivia’s experience with Aplastic Anaemia

Olivia is a 32-year-old doctor working in paediatrics at The Royal Children’s Hospital in Melbourne and lives with her partner Craig and their two dogs, Ted and Millie. Three years ago, ...

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Brenda’s courage in the face of unimaginable loss

“They say grief lasts as long as love – I will be grieving for both my children for the rest of my life.” – Brenda, Mother to Jenaya and Ryan Fanconi anaemia is a rare, ...

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