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Zak

Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant.

Recent advances in genomics testing are saving lives. Stories like Zak’s highlight why Maddie’s Vision is so focussed on funding medical research and clinical trials that will deliver answers to patients sooner.

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Roxanne

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Tae was sick since he was born. At nine years old, he was finally diagnosed with an inherited Bone Marrow Failure - Schwachman Diamond Syndrome. After losing his dad to gastric cancer ...

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Joel’s experience with Aplastic Anaemia

Joel was only six years old when he was diagnosed with Severe Aplastic Anaemia. This was the start of a complex and often lonely journey for the family as they battled through Joel's ...

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DJ’s experience with Severe Aplastic Anaemia

For many patients with Bone Marrow Failure Syndromes, a bone marrow transplant is a hope for a cure. But this treatment comes with the risk of serious complications. Many patients ...

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