Maddie Riewoldt’s Vision is committed to holding regular educational events for patients living with Bone Marrow Failure Syndromes and their families to share knowledge, provide support and strengthen our collaborative networks.

Upcoming Events

Patient and Family Educational Sessions 2026

Telomere Biology Disorders: Current and Emerging Approaches to Diagnosis, Monitoring and Treatment

We are delighted to announce that registrations are now open for our upcoming Patient and Family Educational Session, jointly presented by Maddie’s Vision and Team Telomere.

This virtual session is a valuable opportunity for patients, families and carers to hear from leading experts about how Telomere Biology Disorders are diagnosed and monitored, including the role of laboratory testing, and to gain insights into current and emerging treatment approaches.

Tuesday 24 November
7.00 pm – 8.00 pm AEDT
Virtual via Zoom

We are delighted to welcome Associate Professor Lucy Fox and Dr Pasquale Barbaro, who will share their knowledge and expertise.

Associate Professor Lucy Fox, Haematologist at Peter MacCallum Cancer Centre and the Royal Melbourne Hospital

Dr Pasquale Barbaro, Paediatric Haematologist at Queensland Children’s Hospital.

This session, co-hosted by Maddie’s Vision and Team Telomere, will be chaired by Professor Tracy Bryan, Head of the Cell Biology Unit at Children’s Medical Research Institute.

Following the presentations, there will be an opportunity for attendees to ask questions and hear directly from our expert speakers.

We warmly invite patients, families and carers to join us for this informative and engaging session and look forward to seeing you online on 24 November!