Personal Stories
Thanks to our incredible patients and families for sharing their stories. This is who we’re working for!
When you support Maddie’s Vision, you’re helping power the incredible research that will unlock better treatments and cures for people living with Bone Marrow Failure Syndromes and ensuring they can access the support they need. Thank you.
Lily’s experience with Severe Aplastic Anaemia
At just three years old, Lily was diagnosed with Severe Aplastic Anaemia. What followed was a difficult experience for the family as they navigated Lily’s treatment and the trauma of so ...
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Joel’s experience with Aplastic Anaemia
Joel was only six years old when he was diagnosed with Severe Aplastic Anaemia. This was the start of a complex and often lonely journey for the family as they battled through Joel's ...
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Zahra’s Journey with Myelodysplastic Syndromes
Zahra's journey with Severe Aplastic Anaemia and Myelodysplastic Syndrome (MDS) lead to a bone marrow transplant which saved her life. Her mother Anna has kindly shared their story.
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DJ’s experience with Severe Aplastic Anaemia
For many patients with Bone Marrow Failure Syndromes, a bone marrow transplant is a hope for a cure. But this treatment comes with the risk of serious complications. Many patients ...
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Jack and Hannah’s story with Aplastic Anaemia
When Jack was diagnosed with Aplastic Anaemia, he and his fiancé Hannah had never heard of the condition and weren’t sure what to expect. Tragically, Jack passed away after ...
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Matty & Cheryll
Meet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty's journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her ...
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Carter & Skye
Carter and Skye's mum Karen shares her family's story — from searching for answers to her children's illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure ...
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Evgenia’s Story
Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.
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Kayla
Dairy farmer and business owner Kayla talks about her journey with Aplastic Anaemia — and why funding breakthrough research is so important for people with Bone Marrow Failure Syndromes.
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Roxanne
Roxanne's story: Supporting my son through his treatment for Aplastic Anaemia
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Zac
Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant.
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