When you support Maddie’s Vision, you’re helping power the incredible research that will unlock better treatments and cures for people living with Bone Marrow Failure Syndromes and ensuring they can access the support they need. Thank you.
Joel was only six years old when he was diagnosed with Severe Aplastic Anaemia. This was the start of a complex and often lonely journey for the family as they battled through Joel's ...
Read full storyZahra's journey with Severe Aplastic Anaemia and Myelodysplastic Syndrome (MDS) lead to a bone marrow transplant which saved her life. Her mother Anna has kindly shared their story.
Read full storyFor many patients with Bone Marrow Failure Syndromes, a bone marrow transplant is a hope for a cure. But this treatment comes with the risk of serious complications. Many patients ...
Read full storyWhen Jack was diagnosed with Aplastic Anaemia, he and his fiancé Hannah had never heard of the condition and weren’t sure what to expect. Tragically, Jack passed away after ...
Read full storyMeet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty's journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her ...
Read full storyCarter and Skye's mum Karen shares her family's story — from searching for answers to her children's illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure ...
Read full storyUndergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.
Read full storyDairy farmer and business owner Kayla talks about her journey with Aplastic Anaemia — and why funding breakthrough research is so important for people with Bone Marrow Failure Syndromes.
Read full storyRoxanne's story: Supporting my son through his treatment for Aplastic Anaemia
Read full storyHear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant.
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