For Health Professionals

Maddie’s Vision provides information and support for patients diagnosed with Bone Marrow Failure Syndromes and their families

To all healthcare colleagues, thank you very much for taking time to visit this webpage to find support, resources and information for your patients. 

The Maddie’s Vision Tele-Support Service provides continuous support to patients and their families impacted by Bone Marrow Failure Syndromes, including during diagnosis, treatment, and also long-term follow ups. 

The service provides patients with support and information on:

• What Bone Marrow Failure Syndromes are and how they impact a person’s health
• Treatments and symptom management 
• Clinical trials available
• Referrals to available resources, including education, counselling, financial support

Refer a patient or carer

Health professionals can fill in our online referral form on behalf of the patient and their family, or provide patients with the link to fill in themselves.  Our Tele-Support Service Nurses will connect with these patients to learn about their individual support needs. 

If you would like more information, please contact one of our Tele-Support Service Nurses:

Mei Ling Yeh is available Mondays, Tuesdays, and Wednesdays from 9am to 5pm at 0477 884 955.

Rachel Edwards is available Mondays and Thursdays from 9am to 5pm at 0477 027 982.

Find out more about Bone Marrow Failure Syndromes

Events

Maddie’s Vision has hosted Bone Marrow Failure Symposiums and events for the healthcare and scientific community to share the latest knowledge and research. Visit our events page to watch the recordings and learn about upcoming events.

Latest Bone Marrow Failure Research

Find out more about the latest in research for Bone Marrow Failure Syndromes.

Resources for your patient

We’ve collated a list of Bone Marrow Failure Syndrome organisations and groups that can provide your patient and family with information.

Sign up to our newsletter

To find out more about Bone Marrow Failure Syndromes research, grants and upcoming events, subscribe to our newsletter here.