To all healthcare colleagues, thank you very much for taking time to visit this webpage to find support, resources and information for your patients.
The Maddie’s Vision Telehealth Nurse Service provides continuous support to patients and their families impacted by Bone Marrow Failure Syndromes, including during diagnosis, treatment, and also long-term follow ups.
The service provides patients with support and information on:
Health professionals can fill in our online referral form on behalf of the patient and their family, or provide patients with the link to fill in themselves. Our Telehealth Nurse will connect with these patients to learn about their individual support needs.
If you would like more information, call 0477884955 to speak to our Telehealth Nurse.
Maddie’s Vision has hosted Bone Marrow Failure Symposiums and events for the healthcare and scientific community to share the latest knowledge and research. Visit our events page to watch the recordings and learn about upcoming events.
Find out more about the latest in research for Bone Marrow Failure Syndromes.
We’ve collated a list of Bone Marrow Failure Syndrome organisations and groups that can provide your patient and family with information.
To find out more about Bone Marrow Failure Syndromes research, grants and upcoming events, subscribe to our newsletter here.
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