Our Impact


Your support is helping Maddie’s Vision fund innovative research across Australia and provide support and information for patients and families.

Our impact

Maddie’s Vision is the only organisation in Australia dedicated to supporting patients and families living with Bone Marrow Failure Syndromes.

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committed to research


research projects funded


patients supported by our Telehealth Nurse


of leveraged funding


journal articles published


national symposiums

Driving forward Bone Marrow Failure Syndrome Research 

How does Maddie’s Vision improve health outcomes?

Saving lives with genetic testing

Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant. Recent advances in genomics testing are saving lives. Stories like Zak's highlight why Maddie's Vision is so focussed on funding medical research and clinical trials that will deliver answers to patients sooner.

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Discovering new drug therapies for Bone Marrow Failure Syndromes

For many patients with Bone Marrow Failure Syndromes, there are few options for treatment available if they aren’t eligible for a bone marrow transplant.

EMBRACE clinical trial uncovers the correct diagnosis

While Bone Marrow Failure Syndromes are complex and challenging to diagnose, it’s vital that patients receive an accurate diagnosis as soon as possible to receive the right treatment.

What the Maddie's Vision Telehealth Nurse means to us

When Anna’s daughter Zahra was diagnosed with Severe Aplastic Anaemia and then Myelodysplastic Syndrome, she found the support from Mei Ling invaluable.

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