2025 National Symposium on Bone Marrow Failure Syndromes
THANK YOU FOR JOINING US!
Maddie Riewoldt’s Vision extends a heartfelt thank you to everyone who participated in the 4th National Symposium on Bone Marrow Failure Syndromes, held from 23–25 May 2025 at the Victorian Comprehensive Cancer Centre in Melbourne.
Thanks to the generous support of our partners, we were proud to offer free registration to all attendees—removing barriers to participation and enabling a truly collaborative and inclusive event.
Over the three days, we welcomed expert clinicians, scientists, and allied health professionals from across Australia and internationally. Together, they shared the latest innovations in the diagnosis, treatment, patient care, and clinical trials for Bone Marrow Failure Syndromes, while marking 10 Years of Impact by Maddie’s Vision in advancing research and supporting patients and their families.
We were honoured to have esteemed international speakers participate:
- Dr. Marcin Wlodarski and Dr. Marta Derecka – St. Jude Children’s Research Hospital, Memphis
- Dr. Paula Río (virtual)– Centro de Investigaciones Energéticas, Medioambientales y Tecnológicas (CIEMAT), Madrid
In addition, over 20 national speakers presented cutting-edge research and clinical insights, highlighting both scientific progress and the real-world impact on patients—emphasising the symposium’s focus on innovation and improving the lives of patients and their families.
We were thrilled to have over 150 delegates attend across all days to learn, collaborate and network with local and international Bone Marrow Failure Syndrome experts. The event provided valuable opportunities for networking and engagement.
We’re incredibly proud of what was achieved and look forward to continuing the momentum in advancing care and research for Bone Marrow Failure Syndromes.
“As a researcher I enjoyed the mix of patient experience, clinical experience and new research. It put my area of work into better perspective to further understand the clinical need.”
“I liked the balance of patient stories, clinical work and research. It also felt very inclusive, and very positive. The passion of everyone to improve lives was very clear.”
We would like to acknowledge and extend our sincere gratitude to the following sponsors for their support and contribution towards this event:
Gold Partner
Novartis
Novartis is improving the lives of more than 2.8 million patients across Australia and New Zealand through our medicines. By partnering with the healthcare system we are working for patients to address their needs, and we are committed to accelerating patient access to life saving treatments and associated healthcare.
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The Royal Melbourne Hospital Foundation
The Royal Melbourne Hospital is one of the largest and busiest hospitals in Australia, and our team of nearly 10,000 staff treats more than 100,000 inpatients and 200,000 outpatients each year, including more than 30,000 cancer patients. The Royal Melbourne Hospital Foundation works with individual donors, grateful consumers, companies and partner organisations in our community to support the RMH in its mission to advance health for everyone, every day.
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Takeda
Takeda is a global, values-based, R&D-driven biopharmaceutical leader, committed to bringing Better Health and a Brighter Future to patients, by translating science into highly-innovative medicines. Takeda focuses on four therapeutic areas: Oncology, Rare Diseases, Neuroscience and Gastroenterology (GI). We also make targeted R&D investments in Plasma-Derived Therapies and Vaccines.
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Sobi
At Sobi, we are transforming the lives of people affected by rare diseases. As a specialised biopharmaceutical company, we provide sustainable access to innovative therapies in the areas of haematology, immunology and specialty care. We bring something rare to rare diseases – a rare expertise and a strength in access that allows us to be a partner in care for those with high unmet needs.
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Zouki
Zouki is a hospitality trailblazer with over thirty years of rich history, including two dedicated decades in public health. Zouki specialises in corporate catering, providing comprehensive packages for special events, extending to private residences, corporate locations, and hospitals. Discover the Zouki experience at their numerous locations throughout Victoria and across Australia.
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Jazz Pharmaceuticals
Jazz Pharmaceuticals is a global biopharmaceutical company focused on developing life-changing medicines for people with serious diseases, often with limited or no therapeutic options. Founded in 2003 and headquartered in Dublin, Ireland, Jazz Pharmaceuticals specialises in oncology and neuroscience.
The company has a diverse portfolio of marketed medicines, including leading therapies for sleep disorders and epilepsy, as well as a growing range of cancer treatments. Jazz Pharmaceuticals is committed to transforming biopharmaceutical discoveries into novel medicines, aiming to improve patients’ lives by addressing unmet medical needs.
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Insight Systems
Insight Systems is a trusted provider of advanced audiovisual solutions tailored for many sectors, including healthcare. In addition to system design, installation, and ongoing support, Insight Systems is also the managed services partner with Peter MacCallum Cancer Centre. We are committed to ensuring that healthcare facilities’ AV systems are consistently optimized, secure, and operating at peak performance.
Insight Systems is dedicated to advancing technology across industries, providing the tools and support necessary for teams to deliver exceptional service.
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ISS Cleaning Services
A global business delivering cleaning services at the frontline, we offer clients extensive strategic, tactical, and operational know-how. We create safe places that put people at ease, encourage productivity, and support your organisation’s goals.
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Southern Cross Protection
Visit WebsiteTo find out more please contact us at – [email protected]
2023 National Symposium on Bone Marrow Failure Syndromes
Maddie Riewoldt’s Vision was proud to hold the 2023 Maddie Riewoldt’s National Symposium on Bone Marrow Failure Syndromes in Melbourne from Saturday October 14 – Sunday October 15 at the Victorian Comprehensive Cancer Centre.
Our scientific symposium included international experts Dr Sharon Savage (Clinical Director of the Division of Cancer Epidemiology and Genetics National Cancer Institute, United States) and Professor Rodrigo Calado (Chair, Department of Medical Imaging, Hematology, and Clinical Oncology Ribeirão Preto School of Medicine, University of São Paulo, Brazil), along with 28 national speakers whose presentations covered a mix of basic science, translational research, gene therapy, clinical research and patient case studies across both acquired and inherited Bone Marrow Failure Syndromes.
We were thrilled to have over 150 delegates attend across both days to learn, collaborate and network with local and international Bone Marrow Failure Syndrome experts.
“Fantastic breadth of topics (basic science, translation, gene therapy, clinical adult/paeds, immune and inherited BM, non-haem manifestations), plus a predominantly local/emerging research focus rather than a “big pharma” focus. Very collaborative meeting that fostered discussion among all attendees.
2021 National Symposium
“Excellent chairs, speakers, topics and discussions. Very thought provoking and enlightening.”
Building on the success of the 2019 Symposium, the CRE was delighted to host the 2021 National Symposium on Bone Marrow Failure Syndromes on Thursday 27 May to Saturday 29 May. Due to the pandemic, it was an entirely virtual event, incorporating a full day Patient and Family Forum and a one and a half day Scientific Symposium.
2019 National Symposium
Maddie Riewoldt’s Vision has been the only organisation in Australia prioritising research in Bone Marrow Failure Syndromes since 2016. In May 2019, Maddie’s Vision reinforced this commitment with Australia’s Inaugural National Symposium on Bone Marrow Failure Syndromes which took place across two days at the Victorian Comprehensive Cancer Centre, Melbourne. The Centre of Research Excellence was very proud to organise this scientific symposium which explored both clinical and research aspects of Bone Marrow Biology, acquired and inherited Bone Marrow Failure Syndromes.