Give hope to patients like Larson living with Bone Marrow Failure Syndromes

Your tax-deductible donation can help change lives.

This end of financial year, your tax-deductible donation to Maddie’s Vision will create a brighter future for patients living with Bone Marrow Failure Syndromes. 

Your support will help fund research that will result in faster diagnosis, better treatments, tailored support and improved outcomes for patients and families impacted by Bone Marrow Failure Syndromes. 

Larson’s story

Larson is a zestful, energetic and spirited three year old from Horsham who likes music, dancing, singing, riding his pedal bike and playing with his family. He was diagnosed with a form of bone-marrow failure called Severe Congenital Neutropenia when he was 18 months old, and has been admitted to hospitals, having blood tests and missing important life events because of it ever since. 

When Larson was diagnosed, his mother Erin says this was the first time they had ever heard of his condition. 

“It was very confronting, and in those early months, we felt very alone and isolated. Larson has spent a lot of his life in and out of the hospital, and on antibiotics to prevent bacterial infections he just can’t fight due to his Bone Marrow Failure Syndrome.”

Since his diagnosis, Larson and his parents have faced a roller coaster of trying to understand his diagnosis, navigate proposed treatments and manage their own emotional wellbeing, all whilst endeavouring to give him as normal a life as possible

Larson’s mother, Erin, says the support from Maddie Riewoldt’s Vision helped their family on this journey. 

“Discovering the supportive team at Maddie’s Vision was such a relief. We had finally found a community that understood us and could support us in our time of need. Maddie’s Vision is an organisation that provides daily support for every family. Having their Telehealth Nurse only a phone call away was a relief from the anxiety of everyday questions that can arise in treatment and long-term care plans.”

By donating before 30 June, your tax-deductible gift will help change lives for patients like Larson.

It is so important to support and raise awareness for Bone Marrow Failure Syndromes as there is still so much research to be done. Particularly research to identify these conditions as early as possible, prevent them, and ultimately find a cure.

We know Larson still has a big journey ahead, but we never give up hope for a cure and for Larson to have a normal childhood.

– Erin, Larson’s mother

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