About Maddie's Vision
Our Vision
Bone Marrow Failure Syndromes are prevented, diagnosed and treated with the best available medical treatments in Australia and patients and families receive the support that they need.
Our Mission
Maddie Riewoldt’s Vision funds research that accelerates next generation prevention, diagnosis and treatment of Bone Marrow Failure Syndromes, while supporting patients and families.
Our Story
Maddie Riewoldt was just 26 years old when she tragically died of a Bone Marrow Failure Syndrome called Aplastic Anaemia. When her fight was ending in February 2015, she asked her family to make her a promise; Maddie wanted nobody else to go through what she did.
Maddie Riewoldt’s Vision is her legacy.
Approximately 160 Australians are diagnosed with Bone Marrow Failure Syndromes each year. Distressingly, most of them are children and young adults, and 50% will not survive. Thousands more are living with ongoing complex health issues.
At Maddie’s Vision, we are determined to find better support options, treatments and a cure for patients living with Bone Marrow Failure Syndromes and their families.
To achieve better outcomes and supports for patients, and ultimately find a cure, we work with our highly reputable Scientific Advisory Committee to continue to develop a national medical research strategy. The committee’s aim is to fund the research projects and talented people who we believe will discover the important breakthroughs this area of medicine so urgently needs.
Since inception in 2015, Maddie’s Vision has raised over $8.7 million in committed funds and supported 36 medical research projects in partnership with medical research institutes, hospitals and universities across Australia.
Each year, we will look for and continue to support the projects we believe will lead to breakthroughs and grow our tailored support for patients and families.
Our Centre of Research Excellence in Bone Marrow Biology
Since inception in 2015, Maddie’s Vision has raised over $8.7 million in committed funds and supported 36 medical research projects in partnership with medical research institutes, hospitals and universities across Australia.
Maddie’s Vision has established the first Centre of Research Excellence in Bone Marrow Biology in Australia, dedicated to promoting the collaboration of expert researchers around a common purpose, and providing the technical and peer support necessary for catalysing innovation across specialisations, ideas and projects in Bone Marrow Failure Syndromes.
Each year, we will look for and continue to support the projects we believe will lead to and grow our tailored support for patients and families.