Scientific and Patient Events


Maddie Riewoldt’s Vision is committed to holding regular scientific and patient events to share knowledge of the latest research in Bone Marrow Failure Syndromes and to strengthen our collaborative networks.

2023 National Symposium on Bone Marrow Failure Syndromes

We are excited to announce the 2023 Maddie Riewoldt’s Vision National Symposium on Bone Marrow Failure Syndromes will be held in Melbourne from Saturday October 14 – Sunday October 15.
Our scientific symposium will include expert clinicians and scientists presenting information about the latest research into improved treatments and clinical trials in Bone Marrow Failure Syndromes.

Past events

Patient and Family Forums 2022

Our 2022 Patient and Family virtual forums brought together some of the world’s best doctors and researchers to present the most up-to-date information for those affected by Bone Marrow Failure Syndromes. 

View the recordings below: 

Session 1  Bone Marrow Failure Syndromes – general topics related to care of patients with Bone Marrow Failure Syndromes. Watch the session recording
Session 2  Fanconi Anaemia. Watch the session recording
Session 3  Telomere Biology Disorders, including Dyskeratosis congenita and related disorders. Watch the session recording
Session 4: Ribosomopathies, including Diamond Blackfan Anaemia and Shwachman Diamond Syndrome. Watch the session recording

Thanks to our generous sponsors for making this event possible:

Platinum sponsor


Alexion is focused on providing innovative treatments to patients with life-threatening rare diseases for which there are few, if any, effective treatment options. Alexion established operations in Sydney in 2008 to serve patients in the Australian region. Alexion aim to work in partnership with stakeholders including healthcare providers, patient advocacy organisations, and government in order to best serve patients. By expanding the knowledge and awareness of rare diseases, Alexion aim to help the medical community improve the process for diagnosis and treatment. Alexion’s goal is to bring hope to patients and families by delivering life-changing therapies.

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Gold sponsor


Servier is an international pharmaceutical company governed by a non-profit foundation. Proudly independent, we are committed to therapeutic progress to serve patient needs, with the help of healthcare professionals. Our therapeutic areas include cardiovascular disease, mental health, oncology, and diabetes.

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National Symposium & Patient and Family Forum 2021

“Excellent chairs, speakers, topics and discussions. Very thought provoking and enlightening.”

Building on the success of the 2019 Symposium, the CRE was delighted to host the 2021 National Symposium on Bone Marrow Failure Syndromes on Thursday 27 May to Saturday 29 May. Due to the pandemic, it was an entirely virtual event, incorporating a full day Patient and Family Forum and a one and a half day Scientific Symposium. 

View the recording

Patient and Family Forum 2020

The Maddie’s Vision inaugural Patient and Family Forum took place on Friday 28 August, 2020. The virtual event was incredibly well attended — over 200 registrants, with a live audience of nearly 150 participants, viewed the 4-hour program.

View the recording

National Symposium 2019

Australia’s Inaugural National Symposium on Bone Marrow Failure Syndromes took place across two days in May 2019 at the Victorian Comprehensive Cancer Centre, Melbourne. The Centre of Research Excellence was very proud to organise this scientific symposium which explored both clinical and research aspects of Bone Marrow Biology, acquired and inherited Bone Marrow Failure Syndromes.

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