Scientific and Patient Events

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Maddie Riewoldt’s Vision is committed to holding regular scientific and patient events to share knowledge of the latest research in Bone Marrow Failure Syndromes and to strengthen our collaborative networks.


Current events

We are currently planning for our next CRE Expert Webinar and Patient & Family Educational Session.  Please check back at a later date for further information.

Past events

2024 Patient and Family Educational Session – Aplastic Anaemia

Maddie Riewoldt’s Vision was delighted to host our first Patient and Family Educational Session for 2024, focusing on Aplastic Anaemia.    

Thank you to our leading haematology experts who provided an introduction to Aplastic Anaemia and the role of transplantation in adult and paediatric patients. 

  • Dr Lucy Fox – Haematologist, Peter MacCallum Cancer Centre  
  • Dr David Hughes – Paediatric Haematologist and Bone Marrow transplant specialist, Royal Children’s Hospital 
  • Professor David Ritchie – Haematologist and Bone Marrow transplant specialist, Royal Melbourne Hospital 

If you missed the session, you can watch the webinar recording here:

2024 CRE Expert Webinar Series on Bone Marrow Failure Syndromes 

The Maddie Riewoldt’s Vision Centre of Research Excellence in Bone Marrow Biology, along with our exclusive sponsor Novartis, was proud to present the inaugural Expert Webinar for our scientific community featuring international guest speaker, Dr Austin Kulasekararaj

Expert Webinar One – Aplastic Anaemia Guidelines 
Monday 27 May 

If you missed the webinar, the recording is below.

Austin is a consultant haematologist at King’s College Hospital and an honorary senior clinical lecturer at King’s College, London, United Kingdom. We are delighted he will be presenting an update on the Aplastic Anaemia guidelines recently published by the British Society for Haematology. 

Austin is a consultant haematologist at King’s College Hospital and an honorary senior clinical lecturer at King’s College, London, United Kingdom. We are delighted he will be presenting an update on the Aplastic Anaemia guidelines recently published by the British Society for Haematology. 

We would like to acknowledge and extend our sincere gratitude to our exclusive sponsor for their generous support of this webinar series: 

2023 National Symposium on Bone Marrow Failure Syndromes

Maddie Riewoldt’s Vision was proud to hold the 2023 Maddie Riewoldt’s National Symposium on Bone Marrow Failure Syndromes in Melbourne from Saturday October 14 – Sunday October 15 at the Victorian Comprehensive Cancer Centre.

Our scientific symposium included international experts Dr Sharon Savage (Clinical Director of the Division of Cancer Epidemiology and Genetics National Cancer Institute, United States) and Professor Rodrigo Calado (Chair, Department of Medical Imaging, Hematology, and Clinical Oncology Ribeirão Preto School of Medicine, University of São Paulo, Brazil), along with 28 national speakers whose presentations covered a mix of basic science, translational research, gene therapy, clinical research and patient case studies across both acquired and inherited Bone Marrow Failure Syndromes.

We were thrilled to have over 150 delegates attend across both days to learn, collaborate and network with local and international Bone Marrow Failure Syndrome experts.

“Fantastic breadth of topics (basic science, translation, gene therapy, clinical adult/paeds, immune and inherited BM, non-haem manifestations), plus a predominantly local/emerging research focus rather than a “big pharma” focus. Very collaborative meeting that fostered discussion among all attendees.

Patient and Family Forums 2022

Our 2022 Patient and Family virtual forums brought together some of the world’s best doctors and researchers to present the most up-to-date information for those affected by Bone Marrow Failure Syndromes. 

View the recordings below: 

Session 1  Bone Marrow Failure Syndromes – general topics related to care of patients with Bone Marrow Failure Syndromes. Watch the session recording
Session 2  Fanconi Anaemia. Watch the session recording
Session 3  Telomere Biology Disorders, including Dyskeratosis congenita and related disorders. Watch the session recording
Session 4: Ribosomopathies, including Diamond Blackfan Anaemia and Shwachman Diamond Syndrome. Watch the session recording

Thanks to our generous sponsors for making this event possible

National Symposium & Patient and Family Forum 2021

“Excellent chairs, speakers, topics and discussions. Very thought provoking and enlightening.”

Building on the success of the 2019 Symposium, the CRE was delighted to host the 2021 National Symposium on Bone Marrow Failure Syndromes on Thursday 27 May to Saturday 29 May. Due to the pandemic, it was an entirely virtual event, incorporating a full day Patient and Family Forum and a one and a half day Scientific Symposium. 

View the recording

Patient and Family Forum 2020

The Maddie’s Vision inaugural Patient and Family Forum took place on Friday 28 August, 2020. The virtual event was incredibly well attended — over 200 registrants, with a live audience of nearly 150 participants, viewed the 4-hour program.

View the recording

National Symposium 2019

Australia’s Inaugural National Symposium on Bone Marrow Failure Syndromes took place across two days in May 2019 at the Victorian Comprehensive Cancer Centre, Melbourne. The Centre of Research Excellence was very proud to organise this scientific symposium which explored both clinical and research aspects of Bone Marrow Biology, acquired and inherited Bone Marrow Failure Syndromes.

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