Scientific and Patient Events
Maddie Riewoldt’s Vision is committed to holding regular scientific and patient events to share knowledge of the latest research in Bone Marrow Failure Syndromes and to strengthen our collaborative networks.
Upcoming Events
Patient and Family Educational Sessions 2025 – Session 1: Fanconi Anaemia
We are excited to announce that registrations are now open for the 2025 Maddie Riewoldt’s Vision Patient and Family Educational Session on Fanconi Anaemia. We are delighted to have Associate Professors Wayne Crismani and Adam Nelson present on ‘Fanconi Anaemia: Past, Present, and Future’.
Wednesday 2nd April, 2025
7.30 pm – 8.30 pm AEDT
Virtual, via Zoom (link will be provided to registered participants)
Associate Professor Wayne Crismani, Laboratory Head, the DNA Repair and Recombination laboratory at St Vincent’s Institute of Medical Research, Melbourne, Victoria.
Associate Professor Wayne Crismani leads the DNA Repair and Recombination laboratory at St Vincent’s Institute of Medical Research. He is supported by a Victorian Cancer Agency Mid-Career Research Fellowship and the NHMRC. His research focuses on the genetic condition Fanconi anaemia. His team studies multiple aspects of Fanconi anaemia including strategies for early detection of head and neck cancer, fertility, genetics and molecular biology. He also co-founded Fanconi Anaemia Support Australasia with families in Australia and New Zealand, which provides support and runs meetings about Fanconi anaemia for families, scientists and clinicians to allow the rapid movement of high-quality information for the benefit of patients.
Associate Professor Adam Nelson, Director of Bone Marrow Transplant and Cellular Therapy at the Kids Cancer Centre, Sydney Children’s Hospital, Sydney, NSW.
Adam is Director of Bone Marrow Transplant and Cellular Therapy at the Kids Cancer Centre, Sydney Children’s Hospital, Adam’s clinical and research interests lie in the areas of bone marrow failure and cellular therapy. He spent 7 years as faculty at Cincinnati Children’s Hospital where he developed expertise in the diagnosis, treatment and research into pathogenesis of Bone Marrow Failure Syndromes and related complications. Adam was also the BMT-lead for cellular therapy and the Principal Investigator of multiple studies using CAR-T cells to treat leukaemia, as well as developing novel T-cell therapies to treat viral infections after bone marrow transplantation.
The event will include two presentations from our guest speakers, followed by a 30-minute question and answer session to address patient and family queries.
We look forward to seeing you online on Wednesday April 2nd!
