Carter & Skye
Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.
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A brighter future for patients living with Bone Marrow Failure Syndromes
Since Maddie’s Vision was founded in 2015, we’ve made an extraordinary impact into research and patient and family support.
Our Impact
$9.9m
committed to research
37
research projects funded
170
patients supported by our Tele-Support Service and Peer Support Program
$37.9m
of leveraged funding
Maddie Riewoldt
Maddie Riewoldt was just 26 years old when she died of complications from Aplastic Anaemia, a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldt’s Vision is her legacy.
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Latest News
Keep up to date with the latest Maddie Riewoldt’s Vision news, upcoming events and Bone Marrow Failure Syndromes research.
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National Bone Marrow Failure Syndrome Awareness Week, 2 – 8 March 2026
24 February, 2026 Returning for its second year, the 2026 National Bone Marrow Failure Syndrome Awareness Week will take place from 2–8 March, aiming to build national awareness of Bone …
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10 years of impact: Maddie’s Month raises $1 million!
15 December 2025 Maddie Riewoldt’s Vision is proud to announce a major milestone for Maddie’s Month — $1 million raised since the campaign began in 2016, including another $100,000 …
Read moreMatty & Cheryll
Meet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty’s journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.
Read my storyEvgenia’s Story
Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.
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The research you’re helping to fund
Thanks to our incredible community, we’re funding the projects and researchers we believe will lead to breakthroughs. Since 2015, we’ve supported 36 research projects.
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Evaluating Multidisciplinary Bone Marrow Failure Syndrome Care – a prospective observational clinical trial offering comprehensive diagnostic genomic evaluation, multidisciplinary case review and multidisciplinary clinical care
High resolution definition of the mechanisms of poor graft function following allogeneic haematopoietic stem cell transplantation
Clinical genomic and molecular determinants of outcome in patients with Bone Marrow Failure Syndromes
