A brighter future

For patients with Bone Marrow Failure Syndromes and their families

A brighter future for patients living with Bone Marrow Failure Syndromes

Since Maddie’s Vision was founded in 2015, we’ve made an extraordinary impact into research and patient and family support.

Our Impact

committed to research


research projects funded


patients supported by our Telehealth Nurse


of leveraged funding

Maddie Riewoldt

Maddie Riewoldt was just 26 years old when she died of complications from Aplastic Anaemia, a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldt’s Vision is her legacy.

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Latest News

Keep up to date with the latest Maddie Riewoldt’s Vision news, upcoming events and Bone Marrow Failure Syndromes research.

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New Saints and Maddie’s Vision merch range to be available soon!

We are excited to announce that we will be launching our brand-new St Kilda FC and Maddie’s Vision merch range at the end of July! Over the last nine years we have collaborated with our …

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MRV-funded research is uncovering new strategies to encourage reverted bone marrow cells to grow and replace defective ones

For most patients with inherited Bone Marrow Failure Syndromes, the condition is incurable. Without treatment, their bone marrow cannot make the blood and platelet cells their body …

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Carter & Skye

Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.

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Matty & Cheryll

Meet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty’s journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.

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Evgenia’s Story

Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.

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Founding Partners


Pro Bono Partners

Collaborative Research Institutions

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