Carter & Skye
Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.
Read my storySince Maddie’s Vision was founded in 2015, we’ve made an extraordinary impact into research and patient and family support.
Our Impactcommitted to research
research projects funded
patients supported by our Tele-Support Service and Peer Support Program
of leveraged funding
Maddie Riewoldt was just 26 years old when she died of complications from Aplastic Anaemia, a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldt’s Vision is her legacy.
Learn moreKeep up to date with the latest Maddie Riewoldt’s Vision news, upcoming events and Bone Marrow Failure Syndromes research.
Read More NewsWe are proud to announce the launch of the inaugural National Bone Marrow Failure Syndrome Awareness Week, taking place from 3 – 9 March, 2025. This initiative is calling on all …
Read moreThe Aplastic Anaemia and other Bone Marrow Failure Syndromes Registry (AAR) was the very first research project funded by Maddie’s Vision in 2016. As the major funder of the AAR for the …
Read moreThanks to our incredible community, we’re funding the projects and researchers we believe will lead to breakthroughs. Since 2015, we’ve supported 36 research projects.
View all research projects