Carter & Skye
Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.
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Your donation will help us fund the research that results in better treatments for patients with Bone Marrow Failure Syndromes.
A brighter future for patients living with Bone Marrow Failure Syndromes
Since Maddie’s Vision was founded in 2015, we’ve made an extraordinary impact into research and patient and family support.
Our Impact
$8.7m
committed to research
36
research projects funded
79
patients supported by our Telehealth Nurse
$14m
of leveraged funding
Maddie Riewoldt
Maddie Riewoldt was just 26 years old when she died of complications of a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldt’s Vision is her legacy.
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Latest News
Keep up to date with the latest Maddie Reiwoldt’s Vision news, upcoming events and Bone Marrow Failure Syndromes research.
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Maddie’s Month raises $100,000 for research
We’re thrilled to share that thanks to our partners at Flavorite, Maddie’s Month has raised another $100,000 for Bone Marrow Failure Syndromes research! Since Maddie’s Month …
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New Investigator PhD Scholarship
We are thrilled to announce that the New Investigator PhD Scholarship has been awarded to Haematology Registrar Dr Daniel North. Dr Daniel North’s project title is ‘High resolution …
Read moreMatty & Cheryll
Meet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty’s journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.
Read my storyEvgenia’s Story
Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.
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The research you’re helping to fund
Thanks to our incredible community, we’re funding the projects and researchers we believe will lead to breakthroughs. Since 2015, we’ve supported 36 research projects.
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Discovery of novel niche factors to improve long-term stem cell transplantation in bone marrow failure syndromes.
Utility of a neurobehavioural assessment for treatment planning, educational, and family support for children undergoing bone marrow transplant for non-malignant disease.
High resolution definition of the mechanisms of poor graft function following allogeneic haematopoietic stem cell transplantation
