Carter & Skye
Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.
Read my storyRide or donate to create a brighter future for patients living with Bone Marrow Failure Syndromes this October
Since Maddie’s Vision was founded in 2015, we’ve made an extraordinary impact into research and patient and family support.
Our Impactcommitted to research
research projects funded
patients supported by our Telehealth Nurse
of leveraged funding
Maddie Riewoldt was just 26 years old when she died of complications from Aplastic Anaemia, a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldt’s Vision is her legacy.
Learn moreKeep up to date with the latest Maddie Reiwoldt’s Vision news, upcoming events and Bone Marrow Failure Syndromes research.
Read More NewsWe’re thrilled to announce that Maddie’s Vision has been awarded a Coca-Cola Australia Foundation (CCAF) grant, which we applied for in memory of Jack McIlvar, who passed away from …
Read moreIt has been a great few months for Alex Gadomski Fellowship recipient, Dr Kirsten Fairfax. Dr Fairfax has successfully established the capacity to perform single cell sequencing …
Read moreThanks to our incredible community, we’re funding the projects and researchers we believe will lead to breakthroughs. Since 2015, we’ve supported 36 research projects.
View all research projects