Carter & Skye
Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.
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Help make sure no family faces an empty seat at their table.
A brighter future for patients living with Bone Marrow Failure Syndromes
Since Maddie’s Vision was founded in 2015, we’ve made an extraordinary impact into research and patient and family support.
Our Impact
$9.7m
committed to research
36
research projects funded
160
patients supported by our Tele-Support Service and Peer Support Program
$24.2m
of leveraged funding
Maddie Riewoldt
Maddie Riewoldt was just 26 years old when she died of complications from Aplastic Anaemia, a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldt’s Vision is her legacy.
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Latest News
Keep up to date with the latest Maddie Riewoldt’s Vision news, upcoming events and Bone Marrow Failure Syndromes research.
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Visy’s Corporate Team Ride to Change Lives in United Energy Around the Bay
October 2025 For more than 10 years, Visy’s Corporate Team, led by their passionate captain Mark Mason, have been coming together to ride in United Energy Around the Bay. The …
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Meet one of our top fundraisers for United Energy Around the Bay, Amanda Portelli
October 2025 Amanda Portelli has always loved fitness and enjoys taking on new challenges — especially when they offer the chance to make a difference for an important cause. This year, …
Read moreMatty & Cheryll
Meet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty’s journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.
Read my storyEvgenia’s Story
Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.
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The research you’re helping to fund
Thanks to our incredible community, we’re funding the projects and researchers we believe will lead to breakthroughs. Since 2015, we’ve supported 36 research projects.
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Evaluating Multidisciplinary Bone Marrow Failure Syndrome Care – a prospective observational clinical trial offering comprehensive diagnostic genomic evaluation, multidisciplinary case review and multidisciplinary clinical care
High resolution definition of the mechanisms of poor graft function following allogeneic haematopoietic stem cell transplantation
Clinical genomic and molecular determinants of outcome in patients with Bone Marrow Failure Syndromes
