Carter & Skye
Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.
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Ride or donate to create a brighter future for patients living with Bone Marrow Failure Syndromes this October
A brighter future for patients living with Bone Marrow Failure Syndromes
Since Maddie’s Vision was founded in 2015, we’ve made an extraordinary impact into research and patient and family support.
Our Impact
$8.8m
committed to research
36
research projects funded
86
patients supported by our Telehealth Nurse
$17.3m
of leveraged funding
Maddie Riewoldt
Maddie Riewoldt was just 26 years old when she died of complications from Aplastic Anaemia, a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldt’s Vision is her legacy.
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Latest News
Keep up to date with the latest Maddie Reiwoldt’s Vision news, upcoming events and Bone Marrow Failure Syndromes research.
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Coca-Cola Australia Foundation grant in memory of Jack
We’re thrilled to announce that Maddie’s Vision has been awarded a Coca-Cola Australia Foundation (CCAF) grant, which we applied for in memory of Jack McIlvar, who passed away from …
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Alex Gadomski Fellowship recipient Dr Kirsten Fairfax leverages funding to expand research into Bone Marrow Failure Syndromes
It has been a great few months for Alex Gadomski Fellowship recipient, Dr Kirsten Fairfax. Dr Fairfax has successfully established the capacity to perform single cell sequencing …
Read moreMatty & Cheryll
Meet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty’s journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.
Read my storyEvgenia’s Story
Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.
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The research you’re helping to fund
Thanks to our incredible community, we’re funding the projects and researchers we believe will lead to breakthroughs. Since 2015, we’ve supported 36 research projects.
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Discovery of novel niche factors to improve long-term stem cell transplantation in bone marrow failure syndromes.
Utility of a neurobehavioural assessment for treatment planning, educational, and family support for children undergoing bone marrow transplant for non-malignant disease.
High resolution definition of the mechanisms of poor graft function following allogeneic haematopoietic stem cell transplantation
