A brighter future for patients living with Bone Marrow Failure Syndromes

Since Maddie’s Vision was founded in 2015, we’ve made an extraordinary impact into research and patient and family support.

Our Impact
$8.8m

committed to research

36

research projects funded

100

patients supported by our Tele-Support Service Nurse

$23.6m

of leveraged funding

Maddie Riewoldt

Maddie Riewoldt was just 26 years old when she died of complications from Aplastic Anaemia, a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldt’s Vision is her legacy.

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Latest News

Keep up to date with the latest Maddie Riewoldt’s Vision news, upcoming events and Bone Marrow Failure Syndromes research.

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Maddie Riewoldts Vision

2024 Patient and Family Educational Session – Gene editing for inherited Bone Marrow Failure Syndromes 

We are excited to announce that registrations are now open for the 2024 Maddie Riewoldt’s Vision Patient and Family Educational Session on ‘Gene editing for inherited Bone Marrow …

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Maddie Riewoldts Vision

2024 CRE Expert Webinar Series on Bone Marrow Failure Syndromes – Expert Webinar 3

The Maddie Riewoldt’s Vision Centre of Research Excellence in Bone Marrow Biology, along with our exclusive sponsor Novartis, are proud to present the third Expert Webinar for our …

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Carter & Skye

Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.

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Matty & Cheryll

Meet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty’s journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.

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Evgenia’s Story

Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.

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