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A brighter future for patients living with Bone Marrow Failure Syndromes

Since Maddie’s Vision was founded in 2015, we’ve made an extraordinary impact into research and patient and family support.

Our Impact
$8.8m

committed to research

36

research projects funded

86

patients supported by our Telehealth Nurse

$17.3m

of leveraged funding

Maddie Riewoldt

Maddie Riewoldt was just 26 years old when she died of complications from Aplastic Anaemia, a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldt’s Vision is her legacy.

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Latest News

Keep up to date with the latest Maddie Reiwoldt’s Vision news, upcoming events and Bone Marrow Failure Syndromes research.

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Coca-Cola Australia Foundation grant in memory of Jack 

We’re thrilled to announce that Maddie’s Vision has been awarded a Coca-Cola Australia Foundation (CCAF) grant, which we applied for in memory of Jack McIlvar, who passed away from …

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Alex Gadomski Fellowship recipient Dr Kirsten Fairfax leverages funding to expand research into Bone Marrow Failure Syndromes

It has been a great few months for Alex Gadomski Fellowship recipient, Dr Kirsten Fairfax.  Dr Fairfax has successfully established the capacity to perform single cell sequencing …

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Carter & Skye

Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.

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Matty & Cheryll

Meet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty’s journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.

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Evgenia’s Story

Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.

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