Carter & Skye
Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.
Read my storySince Maddie’s Vision was founded in 2015, we’ve made an extraordinary impact into research and patient and family support.
Our Impactcommitted to research
research projects funded
patients supported by our Tele-Support Service Nurse
of leveraged funding
Maddie Riewoldt was just 26 years old when she died of complications from Aplastic Anaemia, a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldt’s Vision is her legacy.
Learn moreKeep up to date with the latest Maddie Riewoldt’s Vision news, upcoming events and Bone Marrow Failure Syndromes research.
Read More NewsWe are excited to announce that registrations are now open for the 2024 Maddie Riewoldt’s Vision Patient and Family Educational Session on ‘Gene editing for inherited Bone Marrow …
Read moreThe Maddie Riewoldt’s Vision Centre of Research Excellence in Bone Marrow Biology, along with our exclusive sponsor Novartis, are proud to present the third Expert Webinar for our …
Read moreThanks to our incredible community, we’re funding the projects and researchers we believe will lead to breakthroughs. Since 2015, we’ve supported 36 research projects.
View all research projects