Carter & Skye
Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.
Read my storyColour Your Life this November and support patients and families with Bone Marrow Failure Syndromes
Since Maddie’s Vision was founded in 2015, we’ve made an extraordinary impact into research and patient and family support.
Our Impactcommitted to research
research projects funded
patients supported by our Telehealth Nurse
of leveraged funding
Maddie Riewoldt was just 26 years old when she died of complications from Aplastic Anaemia, a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldt’s Vision is her legacy.
Learn moreKeep up to date with the latest Maddie Reiwoldt’s Vision news, upcoming events and Bone Marrow Failure Syndromes research.
Read More NewsThank you to our generous community fundraisers for supporting Maddie’s Vision Our community of supporters is at the heart of everything we do at Maddie’s Vision. Our …
Read moreOn Sunday, October 8, a vibrant crowd of over 7000 riders, ranging from families to seasoned cyclists, eagerly set off from Albert Park for Bicycle Network’s iconic United Energy …
Read moreThanks to our incredible community, we’re funding the projects and researchers we believe will lead to breakthroughs. Since 2015, we’ve supported 36 research projects.
View all research projects