Carter & Skye
Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.
Read my storyEnd of Year Appeal
Give the gift of joy and strength to patients like Olivia this holiday season
A brighter future for patients living with Bone Marrow Failure Syndromes
Since Maddie’s Vision was founded in 2015, we’ve made an extraordinary impact into research and patient and family support.
Our Impact
$8.8m
committed to research
36
research projects funded
100
patients supported by our Tele-Support Service Nurse
$23.6m
of leveraged funding
Maddie Riewoldt
Maddie Riewoldt was just 26 years old when she died of complications from Aplastic Anaemia, a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldt’s Vision is her legacy.
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Latest News
Keep up to date with the latest Maddie Riewoldt’s Vision news, upcoming events and Bone Marrow Failure Syndromes research.
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Join us in welcoming MasterChef’s Andy Allen as our new ambassador for the launch of Maddie’s Month!
This November, you can help support Bone Marrow Failure Syndrome patients by purchasing specially marked Flavorite Mini Toms, Mini Caps and Cherry Truss tomatoes, available exclusively …
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Ride to change lives raises over $45,000 for Maddie’s Vision at United Energy Around the Bay 2024
On Sunday October 6, Maddie Riewoldt’s Vision proudly returned as the official charity partner for United Energy Around the Bay. A vibrant mix of families and seasoned cyclists set off …
Read moreMatty & Cheryll
Meet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty’s journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.
Read my storyEvgenia’s Story
Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.
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The research you’re helping to fund
Thanks to our incredible community, we’re funding the projects and researchers we believe will lead to breakthroughs. Since 2015, we’ve supported 36 research projects.
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Evaluating Multidisciplinary Bone Marrow Failure Syndrome Care – a prospective observational clinical trial offering comprehensive diagnostic genomic evaluation, multidisciplinary case review and multidisciplinary clinical care
High resolution definition of the mechanisms of poor graft function following allogeneic haematopoietic stem cell transplantation
Clinical genomic and molecular determinants of outcome in patients with Bone Marrow Failure Syndromes
