Carter & Skye
Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.
Read my storyYour donation will help us fund the research that results in better treatments for patients with Bone Marrow Failure Syndromes.
Since Maddie’s Vision was founded in 2015, we’ve made an extraordinary impact into research and patient and family support.
Our Impactcommitted to research
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patients supported by our Telehealth Nurse
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Maddie Riewoldt was just 26 years old when she died of complications of a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldt’s Vision is her legacy.
Learn moreKeep up to date with the latest Maddie Reiwoldt’s Vision news, upcoming events and Bone Marrow Failure Syndromes research.
Read More NewsWe’re thrilled to share that thanks to our partners at Flavorite, Maddie’s Month has raised another $100,000 for Bone Marrow Failure Syndromes research! Since Maddie’s Month …
Read moreWe are thrilled to announce that the New Investigator PhD Scholarship has been awarded to Haematology Registrar Dr Daniel North. Dr Daniel North’s project title is ‘High resolution …
Read moreThanks to our incredible community, we’re funding the projects and researchers we believe will lead to breakthroughs. Since 2015, we’ve supported 36 research projects.
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