National Bone Marrow Failure Syndrome Awareness Week

3 – 9 March, 2025

A brighter future for patients living with Bone Marrow Failure Syndromes

Since Maddie’s Vision was founded in 2015, we’ve made an extraordinary impact into research and patient and family support.

Our Impact
$9.3m

committed to research

36

research projects funded

115

patients supported by our Tele-Support Service and Peer Support Program

$23.6m

of leveraged funding

Maddie Riewoldt

Maddie Riewoldt was just 26 years old when she died of complications from Aplastic Anaemia, a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldt’s Vision is her legacy.

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Latest News

Keep up to date with the latest Maddie Riewoldt’s Vision news, upcoming events and Bone Marrow Failure Syndromes research.

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National Bone Marrow Failure Syndrome Awareness Week, 3 – 9 March, 2025

We are proud to announce the launch of the inaugural National Bone Marrow Failure Syndrome Awareness Week, taking place from 3 – 9 March, 2025. This initiative is calling on all …

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The Aplastic Anaemia and other Bone Marrow Failure Syndromes Registry reaches over 550 patients!

The Aplastic Anaemia and other Bone Marrow Failure Syndromes Registry (AAR) was the very first research project funded by Maddie’s Vision in 2016. As the major funder of the AAR for the …

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Carter & Skye

Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.

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Matty & Cheryll

Meet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty’s journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.

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Evgenia’s Story

Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.

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