Personal Story
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Matty & Cheryll

Meet Matt and his grandmother Cheryll who he affectionately calls Honey.

Cheryll talks about Matty’s journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.

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Evgenia’s Story

Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.

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Lily’s experience with Severe Aplastic Anaemia

At just three years old, Lily was diagnosed with Severe Aplastic Anaemia. What followed was a difficult experience for the family as they navigated Lily’s treatment and the trauma of so ...

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Zak

Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant.

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Help change the future for children like Tae

Tae was sick since he was born. At nine years old, he was finally diagnosed with an inherited Bone Marrow Failure - Schwachman Diamond Syndrome. After losing his dad to gastric cancer ...

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