Personal Story
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Matty & Cheryll

Meet Matt and his grandmother Cheryll who he affectionately calls Honey.

Cheryll talks about Matty’s journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.

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Carter & Skye

Carter and Skye's mum Karen shares her family's story — from searching for answers to her children's illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure ...

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Lily’s experience with Severe Aplastic Anaemia

At just three years old, Lily was diagnosed with Severe Aplastic Anaemia. What followed was a difficult experience for the family as they navigated Lily’s treatment and the trauma of so ...

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Zac

Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant.

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Dr Jessica Lake

Dr Jessica Lake is a writer and academic in history and law at the Australian Catholic University. She has published in books, academic journals and newspapers in Australia and the ...

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