Personal Story
decoration

Carter & Skye

Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.

More Personal Stories

Matty & Cheryll

Meet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty's journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her ...

Read full story

Evgenia’s Story

Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.

Read full story

Rob

Rob's story: My journey with Aplastic Anaemia

Read full story

Zak

Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant.

Read full story

Sign up to be the first to hear about our upcoming News & Events