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Carter & Skye

Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.

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Kayla

Dairy farmer and business owner Kayla talks about her journey with Aplastic Anaemia — and why funding breakthrough research is so important for people with Bone Marrow Failure Syndromes.

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Zac

Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant.

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Nick

At 19 years of age, Nick was diagnosed with Aplastic Anaemia.

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Zahra’s Journey with Myelodysplastic Syndromes

Zahra's journey with Severe Aplastic Anaemia and Myelodysplastic Syndrome (MDS) lead to a bone marrow transplant which saved her life. Her mother Anna has kindly shared their story.

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