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Carter & Skye

Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.

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Brenda’s courage in the face of unimaginable loss

“They say grief lasts as long as love – I will be grieving for both my children for the rest of my life.” – Brenda, Mother to Jenaya and Ryan Fanconi anaemia is a rare, ...

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Matt’s experience with Severe Aplastic Anaemia

In early 2022, 49-year-old Matthew Gibb was healthy, full of life, and excited as he prepared to start building his dream home.  Then, after noticing red spots covering half his ...

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Kayla

Dairy farmer and business owner Kayla talks about her journey with Aplastic Anaemia — and why funding breakthrough research is so important for people with Bone Marrow Failure Syndromes.

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Joel’s experience with Aplastic Anaemia

Joel was only six years old when he was diagnosed with Severe Aplastic Anaemia. This was the start of a complex and often lonely journey for the family as they battled through Joel's ...

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