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Carter & Skye

Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.

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Brenda’s courage in the face of unimaginable loss

“They say grief lasts as long as love – I will be grieving for both my children for the rest of my life.” – Brenda, Mother to Jenaya and Ryan Fanconi anaemia is a rare, ...

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Rob

Rob's story: My journey with Aplastic Anaemia

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Evgenia’s Story

Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.

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Dr Jessica Lake

Dr Jessica Lake is a writer and academic in history and law at the Australian Catholic University. She has published in books, academic journals and newspapers in Australia and the ...

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