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Carter & Skye

Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.

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Olivia’s experience with Aplastic Anaemia

Olivia is a 32-year-old doctor working in paediatrics at The Royal Children’s Hospital in Melbourne and lives with her partner Craig and their two dogs, Ted and Millie. Three years ago, ...

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Help change the future for children like Tae

Tae was sick since he was born. At nine years old, he was finally diagnosed with an inherited Bone Marrow Failure - Schwachman Diamond Syndrome. After losing his dad to gastric cancer ...

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Rob

Rob's story: My journey with Aplastic Anaemia

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DJ’s experience with Severe Aplastic Anaemia

For many patients with Bone Marrow Failure Syndromes, a bone marrow transplant is a hope for a cure. But this treatment comes with the risk of serious complications. Many patients ...

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