Personal Story
decoration

Carter & Skye

Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.

More Personal Stories

Jack and Hannah’s story with Aplastic Anaemia

When Jack was diagnosed with Aplastic Anaemia, he and his fiancé Hannah had never heard of the condition and weren’t sure what to expect. Tragically, Jack passed away after ...

Read full story

Evgenia’s Story

Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.

Read full story

Rob

Rob's story: My journey with Aplastic Anaemia

Read full story

Matty & Cheryll

Meet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty's journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her ...

Read full story

Sign up to be the first to hear about our upcoming News & Events