Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.
Help us find a cure for Bone Marrow Failure Syndromes.
At 19 years of age, Nick was diagnosed with Aplastic Anaemia.
Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.
Roxanne's story: Supporting my son through his treatment for Aplastic Anaemia
Joel was only six years old when he was diagnosed with Severe Aplastic Anaemia. This was the start of a complex and often lonely journey for the family as they battled through Joel's ...