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Carter & Skye

Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.

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Help change the future for children like Tae

Tae was sick since he was born. At nine years old, he was finally diagnosed with an inherited Bone Marrow Failure - Schwachman Diamond Syndrome. After losing his dad to gastric cancer ...

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Jack and Hannah’s story with Aplastic Anaemia

When Jack was diagnosed with Aplastic Anaemia, he and his fiancé Hannah had never heard of the condition and weren’t sure what to expect. Tragically, Jack passed away after ...

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Zac

Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant.

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Roxanne

Roxanne's story: Supporting my son through his treatment for Aplastic Anaemia

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