Personal Story
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Carter & Skye

Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.

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Evgenia’s Story

Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.

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DJ’s experience with Severe Aplastic Anaemia

For many patients with Bone Marrow Failure Syndromes, a bone marrow transplant is a hope for a cure. But this treatment comes with the risk of serious complications. Many patients ...

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Zac

Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant.

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Nick

At 19 years of age, Nick was diagnosed with Aplastic Anaemia.

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