Fill in our referral form and our Telehealth Nurse Mei Ling will be be in touch.
Telehealth Nurse Service
We care, we listen, we understand and we can assist.
Maddie’s Vision supports patients living with Bone Marrow Failure Syndromes and their families
As Bone Marrow Failure Syndromes are rare, many patients and families feel overwhelmed, isolated and in need of support when they receive a diagnosis and throughout treatment.
Our Telehealth Nurse provides information and resources about Bone Marrow Failure Syndrome conditions, symptoms, tests, treatments and management.
Our Telehealth Nurse Service will assist you to:
- Understand more about Bone Marrow Failure Syndromes
- Discuss the treatment options usually available
- Learn about symptom management for both immunosuppressant therapy and bone marrow transplantation
- Understand the purposes of self-managed treatment and care plan
- Advice on building relationships with the patient’s medical team
- Refer to required clinical specialists including allied health care professionals
- Connect to support groups and related community and non-profit organisations
- Refer to resources that might provide cultural, religious, education, emotional and financial support relevant to you
- Receive up to date clinical information
Please Note: Our Telehealth Nurse service does not provide medical services like diagnosis, treatment recommendations or laboratory test analysis.
Maddie’s Vision Telehealth Service line is free, confidential, and available for anyone impacted by Bone Marrow Failure Syndromes. Call 0477884955 for more information or book an appointment.
