Projects
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Evaluating Multidisciplinary Bone Marrow Failure Syndrome Care – a prospective observational clinical trial offering comprehensive diagnostic genomic evaluation, multidisciplinary case review and multidisciplinary clinical care

2020-2023 (Grant): Evaluating Multidisciplinary Bone Marrow Failure Syndrome Care – a prospective observational clinical trial offering comprehensive diagnostic genomic evaluation, multidisciplinary case review and multidisciplinary clinical care.

One of the most important initial steps in treating patients with bone marrow failure is getting the right diagnosis. In patients that are suspected to have an inherited bone marrow failure syndrome, complex genetic testing is required to reach the correct diagnosis. The EMBRACE clinical trial aims to measure the impact of providing Australian patients with bone marrow failure an accurate genetic diagnosis, up-to-date and comprehensive information about the disease, and access to treatment and clinical trials. The impact will be measured by evaluating patient outcomes, quality of life and health economic benefits for those receiving care under the EMBRACE study.

By ensuring that Australian patients have access to both the diagnostic and treatment expertise they need, it is hoped that EMBRACE will improve patient outcomes and understanding of these rare disorders.

Related Projects

The Australian Bone Marrow Failure Biobank

2020-2025 (Grant): The Australian Bone Marrow Failure Biobank. Professor Melissa Southey, Biobanking Victoria, Monash University. The establishment of the Australian Marrow Failure Biobank, led by Maddie Riewoldt’s Vision, is a collaboration ...

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The RESELECT Trial – REscuing bone marrow function in patients with relapsed aplaStic anaEmia and/or bone marrow failure post aLlogeneic stEm Cell Transplantation

2020-2024 (Grant): Rescuing bone marrow function in relapsed acquired Aplastic Anaemia and /or poor graft function post allogeneic bone marrow transplantation, Professor David Ritchie, Melbourne Health. Clinical trials are important for the ...

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Aplastic Anaemia Registry (AAR) and the Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry

2015-ongoing: The Australian Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry, Transfusion Research Unit, Monash University. The Aplastic Anaemia Registry (AAR), established in 2012, is a collaboration between the Transfusion ...

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High resolution definition of the mechanisms of poor graft function following allogeneic haematopoietic stem cell transplantation

2023-2028 (Maddie Riewoldt’s Vision/Haematology Society of Australia and New Zealand Scholarship) High resolution definition of the mechanisms of poor graft function following allogeneic haematopoietic stem cell transplantation, Dr Daniel ...

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