Personal Story
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Carter & Skye
Carter and Skye's mum Karen shares her family's story — from searching for answers to her children's illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure ...
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Joel’s experience with Aplastic Anaemia
Joel was only six years old when he was diagnosed with Severe Aplastic Anaemia. This was the start of a complex and often lonely journey for the family as they battled through Joel's ...
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Matty & Cheryll
Meet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty's journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her ...
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