Dr Jessica Lake is a writer and academic in history and law at the Australian Catholic University. She has published in books, academic journals and newspapers in Australia and the United States. She is also the mother of three children, and in 2018, her 3-year-old son was diagnosed with idiopathic Aplastic Anaemia.
Jessica has authored an incredibly moving and eloquent journal article, weaving together the story of her son’s illness with the history of aplastic anaemia and the cultural significance of blood and bone marrow. Titled “Haematopoiesis, or Blood Poetry”, it has been published in the journal of Perspectives in Biology and Medicine (John Hopkins University Press), and is available to access here.
Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant.
Read full storyFor many patients with Bone Marrow Failure Syndromes, a bone marrow transplant is a hope for a cure. But this treatment comes with the risk of serious complications. Many patients ...
Read full storyMeet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty's journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her ...
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