Dr Jessica Lake is a writer and academic in history and law at the Australian Catholic University. She has published in books, academic journals and newspapers in Australia and the United States. She is also the mother of three children, and in 2018, her 3-year-old son was diagnosed with idiopathic Aplastic Anaemia.
Jessica has authored an incredibly moving and eloquent journal article, weaving together the story of her son’s illness with the history of aplastic anaemia and the cultural significance of blood and bone marrow. Titled “Haematopoiesis, or Blood Poetry”, it has been published in the journal of Perspectives in Biology and Medicine (John Hopkins University Press), and is available to access here.
Zahra's journey with Severe Aplastic Anaemia and Myelodysplastic Syndrome (MDS) lead to a bone marrow transplant which saved her life. Her mother Anna has kindly shared their story.
Read full storyLuci was in the prime of her life. At 28 years old, she had moved to Wales with her long-term partner to begin a new adventure. Nine months of fun and fresh experiences went by before ...
Read full storyCarter and Skye's mum Karen shares her family's story — from searching for answers to her children's illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure ...
Read full storyTae was sick since he was born. At nine years old, he was finally diagnosed with an inherited Bone Marrow Failure - Schwachman Diamond Syndrome. After losing his dad to gastric cancer ...
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