Projects
Thanks to our incredible supporters, we fund innovative and ground-breaking medical research towards finding new treatments and cures for Bone Marrow Failure Syndromes and improving patient outcomes
Evaluating Multidisciplinary Bone Marrow Failure Syndrome Care – a prospective observational clinical trial offering comprehensive diagnostic genomic evaluation, multidisciplinary case review and multidisciplinary clinical care
2020-2023 (Grant): Evaluating Multidisciplinary Bone Marrow Failure Syndrome Care – a prospective observational clinical trial offering comprehensive diagnostic genomic evaluation, multidisciplinary case review and multidisciplinary clinical ...
Read moreHigh resolution definition of the mechanisms of poor graft function following allogeneic haematopoietic stem cell transplantation
2023-2028 (Maddie Riewoldt’s Vision/Haematology Society of Australia and New Zealand Scholarship) High resolution definition of the mechanisms of poor graft function following allogeneic haematopoietic stem cell transplantation, Dr Daniel ...
Read moreClinical genomic and molecular determinants of outcome in patients with Bone Marrow Failure Syndromes
2018-2021 (Doctoral Degree Fellowship): Clinical, genomic and molecular determinants of outcome in patients with Bone Marrow Failure Syndromes, Dr Lucy Fox, The University of Melbourne. This project is the first scholarship in Australia to ...
Read moreAplastic Anaemia Registry (AAR) and the Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry
2015-ongoing: The Australian Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry, Transfusion Research Unit, Monash University. The Aplastic Anaemia Registry (AAR), established in 2012, is a collaboration between the Transfusion ...
Read moreSteps toward generating new molecular therapies for Bone Marrow Failure Syndromes
2020 – 2024 (Alex Gadomski Scholarship): Steps toward generating new molecular therapies for Bone Marrow Failure Syndromes, Ariel Simpson, Menzies Institute for Medical Research and University of Tasmania. The only established treatment ...
Read moreTowards targeted treatments for Fanconi Anaemia
2017 – 2019 Fellowship / 2017 Grant-in-Aid, Towards targeted treatments for Fanconi Anaemia, Associate Professor Wayne Crismani, St Vincents Institute for Medical Research Fanconi Anaemia is an inherited disorder which can lead to bone ...
Read moreGrant round update
Maddie’s Vision periodically offer Grant Rounds to build capacity and support outstanding researchers in the areas of Bone Marrow Failure Syndromes.
Discovery of novel niche factors to improve long-term stem cell transplantation in Bone Marrow Failure Syndromes.
2023- 2025 (Fellowship): Discovery of novel niche factors to improve long-term stem cell transplantation in bone marrow failure syndromes. Dr Vashe Chandrakanthan, The University of Adelaide. For many patients with Bone Marrow Failure Syndromes, ...
Read moreUtility of a neurobehavioural assessment for treatment planning, educational, and family support for children undergoing bone marrow transplant for non-malignant disease.
2023-2025 (Fiona Riewoldt Nursing/Allied Health Fellowship): Utility of a neurobehavioural assessment for treatment planning, educational, and family support for children undergoing bone marrow transplant for non-malignant ...
Read moreA preclinical trial of next generation gene editing for the prevention of bone marrow failure in Fanconi Anaemia
2023- 2025 (Fellowship): The inaugural Captain Courageous Fellowship. A preclinical trial of next generation gene editing for the prevention of bone marrow failure in Fanconi Anaemia. Dr Astrid Glaser at the Genome Stability Unit of St Vincent’s ...
Read moreImproving capability and capacity of nurses to assess and manage young people with symptoms associated with acquired and inherited bone marrow failure syndromes.
2022-2024 (Fiona Riewoldt Nursing/Allied Health Fellowship): Improving capability and capacity of nurses to assess and manage young people with symptoms associated with acquired and inherited bone marrow failure syndromes. Rachel Edwards, ...
Read moreDissecting immune dysregulation in acquired bone marrow failure syndromes to identify new therapeutic leads.
2022-2025 (Fellowship): Dissecting immune dysregulation in acquired Bone Marrow Failure Syndromes to identify new therapeutic leads. Associate Professor Rachel Koldej, ACRF Translational Research Laboratory, Melbourne Health. Bone Marrow Failure ...
Read moreOutcomes of Haematopoietic Stem Cell Transplantation for Paediatric Patients with Severe Aplastic Anaemia (SAA) and Bone Marrow Failure (BMF) Syndromes.
2021-2022 (Grant-in-Aid): Outcomes of Haematopoietic Stem Cell Transplantation for Paediatric Patients with Severe Aplastic Anaemia (SAA) and Bone Marrow Failure (BMF) Syndromes. Dr Steven Keogh, Australasian Bone Marrow Transplant Recipient ...
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