Projects

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Thanks to our incredible supporters, we fund innovative and ground-breaking medical research towards finding new treatments and cures for Bone Marrow Failure Syndromes and improving patient outcomes

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Harnessing Somatic Genetic Rescue for Gene Discovery and Novel Avenues of Therapy in Inherited Bone Marrow Failure 

2026–2029 (General Fellowship): Harnessing Somatic Genetic Rescue for Gene Discovery and Novel Avenues of Therapy in Inherited Bone Marrow Failure. Dr Parvathy Venugopal, Adelaide University.  Inherited Bone Marrow Failure Syndromes prevent the ...

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Marrow Matters: Developing and Evaluating a Nurse Practitioner-Led Model of Care for Severe Aplastic Anaemia 

2026–2029 (Fiona Riewoldt Nursing and Allied Health Fellowship): Marrow Matters: Developing and evaluating a Nurse Practitioner-led model of care to improve clinical outcomes and patient and family-centred care for Severe Aplastic Anaemia. ...

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From Genetic Diagnosis to Gene Editing Therapy for Telomerase RNA–Related Bone Marrow Failure 

2026–2029 (General Fellowship): From Genetic Diagnosis to Gene Editing Therapy for Telomerase RNA–Related Bone Marrow Failure. Dr Ashley Yang, Children’s Medical Research Institute.  Telomeres are protective structures at the ends of ...

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Evaluating Multidisciplinary Bone Marrow Failure Syndrome Care – a prospective observational clinical trial offering comprehensive diagnostic genomic evaluation, multidisciplinary case review and multidisciplinary clinical care

2020-2023 (Grant): Evaluating Multidisciplinary Bone Marrow Failure Syndrome Care – a prospective observational clinical trial offering comprehensive diagnostic genomic evaluation, multidisciplinary case review and multidisciplinary clinical ...

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The RESELECT Trial – REscuing bone marrow function in patients with relapsed aplaStic anaEmia and/or bone marrow failure post aLlogeneic stEm Cell Transplantation

2020-2024 (Grant): Rescuing bone marrow function in relapsed acquired Aplastic Anaemia and /or poor graft function post allogeneic bone marrow transplantation, Professor David Ritchie, Melbourne Health. Clinical trials are important for the ...

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The Australian Bone Marrow Failure Biobank

2020-2025 (Grant): The Australian Bone Marrow Failure Biobank. Professor Melissa Southey, Biobanking Victoria, Monash University. The establishment of the Australian Marrow Failure Biobank, led by Maddie Riewoldt’s Vision, is a collaboration ...

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Grant round update

Maddie’s Vision periodically offer Grant Rounds to build capacity and support outstanding researchers in the areas of Bone Marrow Failure Syndromes.

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