Personal Stories
Thanks to our incredible patients and families for sharing their stories. This is who we’re working for!
When you support Maddie’s Vision, you’re helping power the incredible research that will unlock better treatments and cures for people living with Bone Marrow Failure Syndromes and ensuring they can access the support they need. Thank you.
Carter & Skye
Carter and Skye's mum Karen shares her family's story — from searching for answers to her children's illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure ...
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Evgenia’s Story
Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.
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Kayla
Dairy farmer and business owner Kayla talks about her journey with Aplastic Anaemia — and why funding breakthrough research is so important for people with Bone Marrow Failure Syndromes.
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Roxanne
Roxanne's story: Supporting my son through his treatment for Aplastic Anaemia
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Zak
Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant.
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Dr Jessica Lake
Dr Jessica Lake is a writer and academic in history and law at the Australian Catholic University. She has published in books, academic journals and newspapers in Australia and the ...
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