Maddie Riewoldt’s Vision aims to raise funds to #FightlikeMaddie and find new treatments for Bone Marrow Failure. The Vision aims to ultimately find a cure for the syndromes that affect younger Australians each year. Maddie Riewoldt lived with Aplastic Anaemia for only 5 years. There are no words on a page that can do justice to Madeleine Riewoldt’s life and it is her legacy that we wish to honour.
Our organisation began it's mission in collaboration with the Snowdome Foundation (an NFP that funds research into new treatments for blood cancers). Maddie's Vision and Snowdome still work in close partnership on a number of research projects and events (Bone Marrow Failure and Blood Cancers are closely linked in medicine). Maddie's Vision will be eternally grateful for the founding work and governance framework that Snowdome provided in our formative years.
It’s almost as if she knew she wouldn’t be here for long, and burned brighter because of it.
Maddie never did anything by half, and it was the simple things that gave her most joy; family, sport, friends and weekends at the beach. But with as much passion as she loved life, she hated being controlled by this Bone Marrow Failure Syndrome.
Bone marrow is an organ in the body that keeps your blood healthy; producing red and white blood cells and platelets that carry oxygen around your body and help fight disease. When you have a Bone Marrow Failure Syndrome your bone marrow stops producing and it’s only through repeated blood transfusions and bone marrow transplants that people can hope to survive.
For 5 long years Maddie fought this disease bravely. Everyone around her was amazed at how she would fight and the depths of her resilience. And because of this, we always thought she would beat it.
In the end, when Maddie knew her fight was ending, she just wanted to make sure her suffering would make a difference. Maddie Riewoldt’s Vision is that difference. Our organisation has been created to support the understanding of Bone Marrow Failure Syndromes and to help those suffering from the disease and continue towards our ultimate goal – finding the cure.
Maddie fought her battle with inspiring determination and courage. It’s now up to us to put our heads down and lift our hearts and #FightLikeMaddie. Maddie Riewoldt’s Vision has been established to help adolescents and young adults suffering from Bone Marrow Failure Syndromes through research and providing support into treatments, prevention and with an aim to finding a cure.
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Maddie Riewoldt’s Vision has been established to help adolescents and young adults suffering from Bone Marrow Failure Syndromes by funding research into more effective treatment with the aim of finding a cure.