Two forces unite in the fight against rare childhood diseases

June 2025

In medical research, breakthroughs can happen when unexpected connections are made. The intricate relationship between childhood cancers and Bone Marrow Failure Syndromes represents one such critical intersection, where collaborative research could make a difference for young patients.

Recognising this powerful opportunity, Children’s Cancer CoLab and Maddie Riewoldt’s Vision have signed a Memorandum of Understanding (MOU) to collaborate on these challenging conditions and share insights that will help progress our individual organisational missions. 

Genetic mutations affecting bone marrow can lead to both cancer and Bone Marrow Failure Syndromes. By collaborating, both charities hope to improve outcomes for children and adolescents affected by these rare diseases.  

Rare, childhood cancer and Bone Marrow Failure Syndromes have devastating effects on patients and their families:

• Three Australian children die every week from cancer and one in five children diagnosed with cancer do not survive.

• In Australia, up to 160 people will be diagnosed with a Bone Marrow Failure Syndrome every year. Most of those impacted are children and young people and tragically, 50% will not survive.
  

CEO of Children’s Cancer CoLab, Dr Udani Reets, said the MOU represented a pivotal moment for both organisations.

“Sharing insights and exploring research funding opportunities can enhance our impact and optimise resources. This MOU will help us collaborate effectively, reduce duplication, and improve outcomes for patients and their families.”

CEO of Maddie Riewoldt’s Vision, Amy Coote, added:

“This partnership reflects our shared commitment to driving meaningful change for those impacted by these life-threatening conditions. By combining our expertise and resources, we can accelerate research progress and offer renewed hope to patients and families living with Bone Marrow Failure Syndromes and childhood cancers.”

Children’s Cancer CoLab is dedicated to funding collaborative research and innovation for young cancer patients.

Maddie Riewoldt’s Vision is dedicated to advancing vital medical research and providing essential support services to Bone Marrow Failure Syndrome patients and their families.