Maddie Riewoldt’s Vision is delighted to announce the Australian Marrow Failure Biobank (AMFB) Preliminary Application is now open.
The Australian Marrow Failure Biobank, an initiative of the Centre of Research Excellence in Bone Marrow Biology, will provide a premier data and sample resource that enables the undertaking of world class research into BMFS. To date this resource has not existed in Australia and exists in only a few centres internationally.
The most effective means by which to dissect the biology and improve treatment options of a rare disease is through the collection of a comprehensive clinical data set, coupled with a comprehensive biological sample set. In Australia, Maddie’s Vision has supported a national comprehensive clinical data set on newly diagnosed patients with BMFS being collected through the strategic part-funding of the Australian Aplastic Anaemia Registry (AAAR).
Maddie’s Vision is now building on this excellent clinical initiative by establishing a matched tissue sample set. The deliberate and determined achievement of establishing a biorepository of BMF specimens will attract the best and brightest researchers, building a pipeline of cutting-edge research discoveries and providing a critical mass of clinical data and samples that deliver novel findings of international relevance.
The Biobank Preliminary Application’s primary aim is to identify a facility with suitable capacity and capability to function as the AMFB homebase. The application is open to laboratories nation-wide.
The Preliminary Application is available to download here
Applications close January 31 2020 5pm AEDT
Please direct all enquiries to Dr Simonne Neil [email protected]Disclosure: The Maddie’s Vision Scientific Advisory Committee operates with the utmost integrity and probity. Members are required to declare Conflict of Interest. Any member deemed to have Conflict of Interest are subsequently excluded from all aspects of application process, including document finalisation, and application review.
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