News & Events
decoration

National Bone Marrow Failure Syndrome Awareness Week, 3 – 9 March, 2025

We are proud to announce the launch of the inaugural National Bone Marrow Failure Syndrome Awareness Week, taking place from 3 – 9 March, 2025. This initiative is calling on all Australians to “Raise Your Voice, Save Lives, and Join us in the fight against Bone Marrow Failure Syndromes”. This week long campaign aims to raise awareness of Bone Marrow Failure Syndromes and their life-threatening impact on thousands of families across the country, whilst also encouraging Australians to donate blood and stem cells – which are the only hope of survival for patients battling these devastating conditions.

Anyone can get involved and help make an impact with the inaugural National Bone Marrow Failure Syndrome Awareness Week. Stay tuned for social media resources that will be available to download from our website and can help you Raise Your Voice and spread the word! Or you can help Save Lives today by donating blood via Lifeblood or by registering as a stem cell donor via Stem Cell Donors Australia.

The introduction of this annual, week-long campaign marks a decade of progress in research and patient support, allowing us to expand our mission nationally and continue driving growth in support, research, and public awareness of Bone Marrow Failure Syndromes.

Follow us on social media for updates and learn how you can Raise Your Voice, Save Lives, and Join us in the fight against Bone Marrow Failure Syndromes!

Instagram: @MaddiesVision

Facebook: Maddie Riewoldt’s Vision

LinkedIn: Maddie Riewoldt’s Vision

X: @MaddiesVision

Related Articles

MRV-funded research is uncovering new strategies to encourage reverted bone marrow cells to grow and replace defective ones

For most patients with inherited Bone Marrow Failure Syndromes, the condition is incurable. Without treatment, their bone marrow cannot make the blood and platelet cells their body ...

Read more

Five Years of Maddie’s Legacy

It’s been five years since Maddie Riewoldt lost her life in her fight against Bone Marrow Failure, but her legacy lives on stronger than ever.

Read more

Maddie Riewoldt’s Vision-funded Australian Marrow Failure Biobank at Monash University recruits first participant

26 June 2025 A new Australian initiative to accelerate research into rare Bone Marrow Failure Syndromes (BMFS) is now open and recruiting participants. The Australian Marrow Failure ...

Read more

Alex Gadomski Fellowship recipient Dr Kirsten Fairfax leverages funding to expand research into Bone Marrow Failure Syndromes

It has been a great few months for Alex Gadomski Fellowship recipient, Dr Kirsten Fairfax.  Dr Fairfax has successfully established the capacity to perform single cell sequencing ...

Read more

Sign up to be the first to hear about our upcoming News & Events