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Zac

Hear how genetic testing was able to show the best treatment path for young Zak: a pre-emptive bone marrow transplant.

Recent advances in genomics testing are saving lives. Stories like Zak’s highlight why Maddie’s Vision is so focussed on funding medical research and clinical trials that will deliver answers to patients sooner.

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Carter & Skye

Carter and Skye's mum Karen shares her family's story — from searching for answers to her children's illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure ...

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Roxanne

Roxanne's story: Supporting my son through his treatment for Aplastic Anaemia

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Zahra’s Journey with Myelodysplastic Syndromes

Zahra's journey with Severe Aplastic Anaemia and Myelodysplastic Syndrome (MDS) lead to a bone marrow transplant which saved her life. Her mother Anna has kindly shared their story.

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Jack and Hannah’s story with Aplastic Anaemia

When Jack was diagnosed with Aplastic Anaemia, he and his fiancé Hannah had never heard of the condition and weren’t sure what to expect. Tragically, Jack passed away after ...

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