Carter & Skye
Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.
Read my storyWe're on a mission to find better treatments and cures for Bone Marrow Failure Syndromes.
Maddie Riewoldt
Maddie Riewoldt was just 26 years old when she died of complications of a Bone Marrow Failure Syndrome called Aplastic Anaemia. Maddie's Vision is her legacy.
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Maddie’s Vision supports patients and families living with Bone Marrow Failure Syndromes
Bone Marrow Failure Syndromes are a collection of medical conditions where the bone marrow stops working, or works insufficiently. This means that bone marrow stem cells can’t produce enough healthy red blood cells, white blood cells and platelets to meet the body’s daily requirements.
Matty & Cheryll
Meet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty’s journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.
Read my storyEvgenia’s Story
Undergoing a bone marrow transplant can be a lonely experience. Here, Evgenia shares her story in the hope that it will help others going down this road.
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Get support
Our Telehealth Nurse is accessible to anyone affected by Bone Marrow Failure Syndromes, including patients newly diagnosed or undergoing long-term follow-up, carers, families, friends and health professionals.
