Maddie’s Vision supports patients living with Bone Marrow Failure Syndromes and their families
As Bone Marrow Failure Syndromes are rare, many patients and families feel overwhelmed, isolated and in need of support when they receive a diagnosis and throughout treatment.
Our Telehealth Nurse service is the only available support for Bone Marrow Failure Syndrome patients in Australia. This comprehensive service educates and empowers patients and their families with knowledge and resources.
Our nurse will:
- Educate patients and families on Bone Marrow Failure Syndromes and its related diseases; including diagnosis, treatments, symptom management and supportive care.
- Provide patient and family-centered support throughout the various stages of care, including long term follow up.
- Help build an understanding of how to access support from clinical specialists, including allied health care professionals.
- Connect patients and families with organisations and resources that can provide educational, social, emotional, financial, and cultural support.
- Listen, understand, and assist patients and families to feel connected and confident in navigating their journey.
Please Note: Our Telehealth Nurse service does not provide medical services like diagnosis, treatment recommendations or laboratory test analysis.
Book an appointment with our Telehealth Nurse service
Maddie’s Vision Telehealth Service line is free, confidential, and available for anyone impacted by Bone Marrow Failure Syndromes.
Book online using our form below, or alternatively, you can call 0477 884 955 on Mondays, Tuesdays and Wednesdays during business hours to request an appointment.
