Bone Marrow Failure Syndrome is prevented, diagnosed and treated with the best available medical treatments in Australia and Bone Marrow Failure Syndrome patients and families receive the support that they need.
Maddie Riewoldt’s Vision funds research that accelerates next generation prevention, diagnosis and treatments of BMFS while supporting patients and families living with Bone Marrow Failure Syndromes.
About Maddie's Vision
Founded in June 2015 by the Riewoldt Family, the aim is to understand more about Bone Marrow Failure Syndromes through medical research.
Current therapies are not well tolerated and today's patients and their families face a narrow range of treatment options that are very disruptive to daily life.
To achieve better outcomes, and ultimately find a cure, we work with our highly reputable Scientific Advisory Committee to continue to develop a national medical research strategy.
The Committee's aim is to fund the research projects and talented people who we believe will discover the important breakthroughs this area of medicine so urgently needs.
Since inception in 2015, Maddie's Vision has raised over $7.7 million in committed funds and supported 34 medical research projects in partnership with medical research institutes, hospitals and universities across Australia.
Each year, we will look for and continue to support the projects we believe will lead to breakthroughs.
Our organisation was founded in collaboration with the Snowdome Foundation (a not-for-profit that funds research into new treatments for blood cancers). Maddie's Vision and Snowdome now operate as separate entities but we still work in close partnership on a number of research projects and events such as The Bloody Good Dinner. Maddie's Vision will be eternally grateful for the founding work and governance framework that Snowdome provided in our formative years.
In 2018, with assistance from Victorian State Government funding, we established the world's first Centre of Research Excellence in Bone Marrow Biology (CRE). The CRE is a 'brains trust' in Bone Marrow Biology, a virtual centre that provides a centralised contact point for existing researchers, future researchers, commercial entities and community groups.
The establishment of the CRE in Bone Marrow Biology provides Maddie Riewoldt's Vision with the capacity to incorporate additional projects, complete the critical mass of research and complimentary projects, provide additional infrastructure and the co-ordination of BMFS research required to find a cure for this disease.
Throughout everything we do, we are committed to:
- funding and supporting cutting-edge medical research.
- the development of collaborative, accessible information systems.
- fixed-term financial support for young researchers through Fellowship positions and Grant in Aid support.
- national collaboration via a diagnosis registry, establishment of a biobank to collect and store tissue samples.
- governance and support of the Centre of Research Excellence in Bone Marrow Biology.