Funding boost to find a cure for Bone Marrow Failures
The Andrews Government have announced
a $2.4 million grant to fund Maddie
Riewoldt’s dream, a world first research centre for Bone Marrow Failure
Syndromes and a co-funded International Research Fellowship opportunity with
the Victorian Cancer Agency.
Premier Daniel Andrews and Minister
for Health Jill Hennessy today confirmed support for the Maddie Riewoldt’s
Vision Centre for Research Excellence (CRE) in Bone Marrow Biology which will
see experts from across Australia collaborate to develop a better understanding
of bone marrow function.
“Maddie fought so hard and now her
legacy will live on in a new world-class research centre. This is an investment
that has the potential to change and save lives.”, says Premier Daniel Andrews.
Maddie Riewoldt’s Vision is dedicated
to finding a cure for Bone Marrow Failure Syndromes (BMFS) and was founded by
the Riewoldt family following Maddie’s tragic death in February, 2015. Maddie
Riewoldt’s Vision has been a galvanizing force in elevating awareness and
raising substantial funds towards purposefully identifying and supporting the
best researchers in Victoria.
“Maddie’s Vision gives hope to
families across Victoria that one day we will find a cure for this awful
disease. We’re proud to be supporting them in this lifesaving work.”, says Jill
BMFS mainly affects young people,
like Maddie, aged 17 to 40. About 160 young Australians are diagnosed with the
syndrome every year. Sadly, more than half will die from the disease.
Nick Riewoldt, Chair of Maddie
Riewoldt’s Vision says, “To date, we have raised $2.6 million dollars and
committed to 9 research projects since we launched in June 2015. People talk
about game changers, this is that very moment. This announcement is one that I
know will go down in the history for Bone Marrow Failures. These funds will
allow us to be global leaders in the research we need to undertake to find a
cure. Maddie’s incredible battle
means something more today.”
Bone Marrow Failure Syndromes have a
complex pathophysiology, represent difficult diagnostic challenges, have
devastating impact on patients and their families and is one of the most
demanding diseases to treat in medicine. Little work was been done before
Maddie’s Vision started.
Professor David Ritchie, Head of Bone
Marrow Transplant at Royal Melbourne Hospital, says “Through a
process of targeted and coordinated basic and clinical research there is huge
potential to radically alter our understanding of bone marrow biology, design
and apply new treatments and substantially improve the outcomes for patients
The establishment of a CRE in bone
marrow biology provides Maddie Riewoldt’s Vision the capacity to incorporate
additional projects, complete the critical mass of researchers and
complementary projects, provide additional infrastructure and the coordination
of BMFS research required to find a cure for this disease.
Nicky Long, CEO of Maddie’s Vision
stated, “The establishment of a CRE is our next logical step and will be
undertaken with the same clarity of vision and probity that has guided the work
to date. We have gathered together the core members of our research team and
the coordination of the CRE will allow us to extend this core, provide critical
synchronization of our current and future research opportunities to accelerate
the research outcomes”.
Maddie Riewoldt’s Vision has been
steadfast in adhering to its principles of ethical fund raising under the
strict governance standards and funding only the highest quality research. The
research work is only just beginning but the expectations of having an impact