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World Rare Disease Day 2024

Rare Disease Day, held this year on February 29, is a global movement that aims to recognise and raise awareness for the 300 million people worldwide who are living with a rare disease, ...

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Join the Maddie’s Vision Cents2Bills Fundraising Program

At Maddie Vision, we’re making regular giving easier than ever, and we want you to be a part of it! Now you can support Maddie’s Vision through Cents2Bills, which will enable you ...

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Eight Epic Peaks – An adventure for a cause

Meet Belinda, an adventurous hiker who’s taking on a mighty challenge this year. She’s decided to hike the State 8 Peaks, which are the tallest mountains in each state of ...

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Maddie’s Month raises $100,000 for Bone Marrow Failure Syndrome research and support!

We’re thrilled to share that thanks to our partners at Flavorite and with the support of Coles Supermarkets, Maddie’s Month has raised another $100,000 for Bone Marrow Failure Syndromes ...

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Increased support for patients and families in Tasmania

We are thrilled to announce that thanks to the efforts of The Alex Gadomski Fellowship and Maddie Riewoldt’s Vision, the Haematology Clinical Nurse Consultant role at the Royal ...

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Transform empty cans into hope for patients and families

Thanks to Victoria’s Container Deposit Scheme, you can now turn your empty drink containers into hope for patients living with Bone Marrow Failure Syndromes and their families. ...

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Grant round update

Maddie’s Vision periodically offer Grant Rounds to build capacity and support outstanding researchers in the areas of Bone Marrow Failure Syndromes.

Support Hugo’s ride!

Young Hugo is gearing up for the ride of a lifetime this April, cycling along the entire east coast of Tasmania and covering just under 350 kilometres to raise awareness and funds for ...

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Supporting patients and families through connection and sharing lived experiences: Maddie’s Vision launches Peer Support program

Maddie Riewoldt’s Vision is committed to providing patients and families impacted by Bone Marrow Failure Syndrome with the best support and resources available as they navigate this ...

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Coca-Cola Australia Foundation grant in memory of Jack 

We’re thrilled to announce that Maddie’s Vision has been awarded a Coca-Cola Australia Foundation (CCAF) grant, which we applied for in memory of Jack McIlvar, who passed away from ...

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Alex Gadomski Fellowship recipient Dr Kirsten Fairfax leverages funding to expand research into Bone Marrow Failure Syndromes

It has been a great few months for Alex Gadomski Fellowship recipient, Dr Kirsten Fairfax.  Dr Fairfax has successfully established the capacity to perform single cell sequencing ...

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Measure in Love for Larson – A Pop-Up Piano Bar

When Larson was diagnosed with a Bone Marrow Failure Syndrome, the Horsham community gathered around him and his parents with a beautiful event to raise awareness and funds for research ...

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Amy Coote, Fiona Riewoldt, Joe Riewoldt, Brendan Fevola, and Deanna Berry at the United Energy Around the Bay launch

This is your ride! Maddie’s Vision joins United Energy Around the Bay

Maddie Riewoldt’s Vision is thrilled to announce we are the official charity partner for United Energy Around the Bay, raising awareness and funds for those impacted by Bone ...

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