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# Maddie Riewoldt's Vision

#FightLikeMaddie

## Sitemaps

- [XML Sitemap](https://www.mrv.org.au/sitemap.xml): Contains all public & indexable URLs for this website.

## News & Events

- [Latest News](https://www.mrv.org.au/news-events/) - Discover and subscribe to Maddie Riewoldt's Vision latest News & Events to keep up to date fundraising activities to fight Bone Marrow Failure Syndromes.
- [Maddie Riewoldt’s Vision Announces 2026 Grant Round Fellowship Recipients](https://www.mrv.org.au/maddie-riewoldts-vision-announces-2026-grant-round-fellowship-recipients/) - 16 July 2026 Maddie's Vision is proud to announce the Fellowship recipients of its 2026 Grant Round. This year's Grant Round has awarded two General Fellowships and one Fiona Riewoldt Nursing and Allied Health Fellowship to support innovative research and clinical projects that will improve understanding, diagnosis and care for people living with Bone Marrow
- [Thank you for supporting National Bone Marrow Failure Syndrome Awareness Week 2026](https://www.mrv.org.au/thank-you-for-supporting-national-bone-marrow-failure-syndrome-awareness-week-2026/) - 23 June 2026In March, we proudly delivered our second National Bone Marrow Failure Syndrome Awareness Week, uniting patients, families, partners and supporters across Australia to raise awareness of Bone Marrow Failure Syndromes and inspire life-saving action. Held from 2–8 March, the campaign encouraged Australians to Raise Your Voice. Save Lives and Join us in the
- [The Table for Change Gala 2026 raises over $340,000! Thank you for your generosity and support](https://www.mrv.org.au/the-table-for-change-gala-2026-raises-over-340000-thank-you-for-your-generosity-and-support/) - Relive the magic of the evening with our official Table for Change Gala Highlight Video Maddie Riewoldt’s Vision is proud to announce that the 2026 Table for Change Gala has raised more than $340,000 in support of patients and families affected by Bone Marrow Failure Syndromes. Hosted by generous partners at Marvel Stadium on Friday
- [National Bone Marrow Failure Syndrome Awareness Week, 2 - 8 March 2026](https://www.mrv.org.au/national-bone-marrow-failure-syndrome-awareness-week-2-8-march-2026/) - 24 February, 2026 Returning for its second year, the 2026 National Bone Marrow Failure Syndrome Awareness Week will take place from 2–8 March, aiming to build national awareness of Bone Marrow Failure Syndromes and their life-threatening impact on thousands of families across Australia. Australians are being encouraged to help save lives by donating blood via
- [Melbourne researchers advance potential new RNA treatment for rare childhood Bone Marrow Failure Syndromes](https://www.mrv.org.au/melbourne-researchers-advance-potential-new-rna-treatment-for-rare-childhood-bone-marrow-failure-syndromes/) - 15 December 2025 Maddie Riewoldt’s Vision is incredibly proud to have supported cutting-edge research at St Vincent’s Institute of Medical Research (SVI) that is advancing a new RNA-based approach to treat rare childhood diseases — including Bone Marrow Failure Syndromes. Backed by the Maddie Riewoldt’s Vision and the Victorian Government through mRNA Victoria, the project
- [10 years of impact: Maddie's Month raises $1 million!](https://www.mrv.org.au/10-years-of-impact-maddies-month-raises-1-million/) - 15 December 2025 Maddie Riewoldt’s Vision is proud to announce a major milestone for Maddie’s Month — $1 million raised since the campaign began in 2016, including another $100,000 raised this November to support Australians living with Bone Marrow Failure Syndromes. The result marks ten years of extraordinary community generosity, brought to life through an
- [Maddie Riewoldt’s Vision announces new partnership with Lokpay Digital to turn everyday payments into life-changing impact](https://www.mrv.org.au/maddie-riewoldts-vision-announces-new-partnership-with-lokpay-digital-to-turn-everyday-payments-into-life-changing-impact/) - 15 December 2025 We are delighted to announce a new partnership with Lokpay Digital that will help transform everyday transactions into meaningful support for Australians living with Bone Marrow Failure Syndromes. Partnering with purpose-driven businesses like Lokpay Digital enables us to expand our reach and create new avenues for impact. Through this collaboration, businesses using
- [The Aplastic Anaemia and other Bone Marrow Failure Syndromes Registry reaches over 550 patients!](https://www.mrv.org.au/the-aplastic-anaemia-and-other-bone-marrow-failure-syndromes-registry-reaches-over-500-patients/) - February 2025 The Aplastic Anaemia and other Bone Marrow Failure Syndromes Registry (AAR) was the very first research project funded by Maddie’s Vision in 2016. As the major funder of the AAR for the last eight and a half years, we are thrilled to announce that the registry has exceeded 550 patients! This is an
- [Coalition commitment to support Maddie Riewoldt’s Vision](https://www.mrv.org.au/coalition-commitment-to-support-maddie-riewoldts-vision/) - April 2025 We were truly honoured to welcome The Hon. Peter Dutton MP, Leader of the Opposition, and Senator the Hon. Anne Ruston, Shadow Minister for Health and Aged Care, for this important announcement. An elected Dutton Coalition Government will invest $3 million over three years to support Maddie Riewoldt’s Vision. This funding will grow
- [Maddie’s Vision partners with leading research institutes to strengthen patient and family engagement](https://www.mrv.org.au/maddies-vision-partners-with-leading-research-institutes-to-strengthen-patient-and-family-engagement/) - October 2025 Maddie’s Vision is proud to be partnering with several of Australia’s leading research institutions — including Murdoch Children’s Research Institute (MCRI) and the Australian National University (ANU) — as a consumer engagement collaborator on their respective Medical Research Future Fund (MRFF) projects. At the ANU, Professor Eduardo Eyras and Associate Professor Amee George
- [Collaborative fellowship targets critical gap in Bone Marrow Failure Syndromes and childhood cancer](https://www.mrv.org.au/collaborative-fellowship-targets-critical-gap-in-bone-marrow-failure-syndromes-and-childhood-cancer/) - 11 September, 2025 Children's Cancer CoLab and Maddie Riewoldt's Vision have launched a new fellowship, investing up to $250,000 to support a clinician-researcher working at the intersection of Bone Marrow Failure Syndromes and paediatric oncology. The Children's Cancer CoLab and Maddie Riewoldt's Vision Clinician-Researcher Fellowship addresses the critical talent shortage in this specialised field, where
- [Meet one of our top fundraisers for United Energy Around the Bay, Amanda Portelli](https://www.mrv.org.au/meet-one-of-our-top-fundraisers-for-united-energy-around-the-bay-amanda-portelli/) - October 2025 Amanda Portelli has always loved fitness and enjoys taking on new challenges — especially when they offer the chance to make a difference for an important cause. This year, she’s combining both passions by taking on United Energy Around the Bay for the very first time and fundraising for Maddie Riewoldt’s Vision. As
- [Visy’s Corporate Team Ride to Change Lives in United Energy Around the Bay](https://www.mrv.org.au/visys-corporate-team-ride-to-change-lives-in-united-energy-around-the-bay/) - October 2025 For more than 10 years, Visy’s Corporate Team, led by their passionate captain Mark Mason, have been coming together to ride in United Energy Around the Bay. The team’s passion for cycling is matched by their commitment to making a difference. For the past three years, Visy has proudly supported Maddie Riewoldt’s Vision,
- [The Table for Change Gala continues to ‘drive’ change](https://www.mrv.org.au/the-table-for-change-gala-continues-to-drive-change/) - On June 11, our Table for Change Gala raised over $435,000 to help accelerate research into Bone Marrow Failure Syndromes and ensure patients and families receive support when they need it most. It was a truly inspirational night, made possible by the generosity of guests, donors, sponsors, and partners. One of the most heartwarming highlights
- [The Bowler Bunch raise over $12,000 for Maddie’s Vision in HBF Run for a Reason!](https://www.mrv.org.au/the-bowler-bunch-raise-over-12000-for-maddies-vision-in-hbf-run-for-a-reason/) - June 2025 It is our honour to introduce The Bowler Bunch! This beautiful family of four includes Baz, Shaz, Luke and Connor. This inspirational family’s story is one of courage, love, and unity. Originally from Derbyshire, England, life took an unexpected turn when Baz came home with a job offer in Australia and just two
- [Two forces unite in the fight against rare childhood diseases](https://www.mrv.org.au/two-forces-unite-in-the-fight-against-rare-childhood-diseases/) - June 2025 In medical research, breakthroughs can happen when unexpected connections are made. The intricate relationship between childhood cancers and Bone Marrow Failure Syndromes represents one such critical intersection, where collaborative research could make a difference for young patients. Recognising this powerful opportunity, Children's Cancer CoLab and Maddie Riewoldt's Vision have signed a Memorandum of
- [Maddie Riewoldt’s Vision raises over $435,000 at the inaugural Table for Change Gala](https://www.mrv.org.au/maddie-riewoldts-vision-raises-over-435000-at-the-inaugural-table-for-change-gala/) - June 2025 Maddie Riewoldt’s Vision is proud to announce that the inaugural Table for Change Gala has raised more than $435,000, thanks to the extraordinary generosity and support of guests, donors, sponsors and partners. Held on Wednesday 11th June 2025 at Marvel Stadium, the event brought together philanthropic and corporate leaders, researchers, and supporters united
- [Highlights from the 4th National Symposium on Bone Marrow Failure Syndromes](https://www.mrv.org.au/highlights-from-the-4th-national-symposium-on-bone-marrow-failure-syndromes/) - From 23–25 May 2025, Maddie’s Vision was honoured to host the 4th National Symposium on Bone Marrow Failure Syndromes held at the Victorian Comprehensive Cancer Centre (VCCC). This important event brought together Australia’s leading clinicians, scientists, researchers, allied health professionals, industry partners, patients and families—along with international experts—for three days of knowledge sharing and collaboration
- [Maddie Riewoldt’s Vision-funded Australian Marrow Failure Biobank at Monash University recruits first participant](https://www.mrv.org.au/maddie-riewoldts-vision-funded-australian-marrow-failure-biobank-at-monash-university-recruits-first-participant/) - 26 June 2025 A new Australian initiative to accelerate research into rare Bone Marrow Failure Syndromes (BMFS) is now open and recruiting participants. The Australian Marrow Failure Biobank (AMFB) at Monash University, supported by Maddie Riewoldt’s Vision, is a dedicated disease-specific collection housed within Biobanking Victoria – one of Australia’s leading and internationally recognised biobanking
- [Thank you for supporting the first-ever National Bone Marrow Failure Syndrome Awareness Week](https://www.mrv.org.au/thank-you-for-supporting-the-first-ever-national-bone-marrow-failure-syndrome-awareness-week/) - We are beyond proud to reflect on the success of the inaugural National Bone Marrow Failure Syndrome Awareness Week, that was held from 3 - 9 March 2025. This week was a true testament to the power of community, and we are deeply grateful for the overwhelming support we received from all corners of Australia.
- [Tim takes on a mammoth Ultraman Challenge for a cause close to his heart](https://www.mrv.org.au/tim-takes-on-a-mammoth-ultraman-challenge-for-a-cause-close-to-his-heart/) - This May, Tim Belstead is set to face the Ultraman in Noosa, one of the toughest endurance events around, to support a cause very close to his heart. Tim is the cousin of the late Alex Gadomski, who tragically passed away at just 21 years of age after battling the Bone Marrow Failure Syndrome, Aplastic
- [A historic day at the final Maddie’s Match - Thank you for your generosity and support!](https://www.mrv.org.au/a-historic-day-at-the-final-maddies-match-thank-you-for-your-generosity-and-support/) - We are so grateful to everyone who joined us for the final Maddie’s Match, your support, energy, and generosity made this event truly unforgettable. The day was filled with countless special moments, with the Saints securing a spectacular victory to top it all off! The excitement was palpable, and the spirit of our community was
- [National Bone Marrow Failure Syndrome Awareness Week, 3 – 9 March, 2025](https://www.mrv.org.au/launch-of-the-inaugural-national-bone-marrow-failure-syndrome-awareness-week-3-9-march-2025/) - We are proud to announce the launch of the inaugural National Bone Marrow Failure Syndrome Awareness Week, taking place from 3 - 9 March, 2025. This initiative is calling on all Australians to “Raise Your Voice, Save Lives, and Join us in the fight against Bone Marrow Failure Syndromes”. This week long campaign aims to
- [Join us in welcoming MasterChef’s Andy Allen as our new ambassador for the launch of Maddie’s Month!](https://www.mrv.org.au/join-us-in-welcoming-masterchefs-andy-allen-as-our-new-ambassador-for-the-launch-of-maddies-month/) - This November, you can help support Bone Marrow Failure Syndrome patients by purchasing specially marked Flavorite Mini Toms, Mini Caps and Cherry Truss tomatoes, available exclusively at Coles! For every pack sold, 15 cents will be donated to Maddie Riewoldt’s Vision, with a goal to raise $100,000! Maddie Riewoldt’s Vision is thrilled to welcome MasterChef’s
- [Alex Gadomski Fellowship recipient Dr Kirsten Fairfax leverages funding to expand research into Bone Marrow Failure Syndromes](https://www.mrv.org.au/alex-gadomski-fellowship-recipient-dr-kirsten-fairfax-leverages-funding-to-expand-research-into-bone-marrow-failure-syndromes/) - It has been a great few months for Alex Gadomski Fellowship recipient, Dr Kirsten Fairfax. Dr Fairfax has successfully established the capacity to perform single cell sequencing at the University of Tasmania, facilitating projects in Tasmania that would not have previously been possible. Her team has so far been able to generate sequences of RNA
- [Ride to change lives raises over $45,000 for Maddie’s Vision at United Energy Around the Bay 2024](https://www.mrv.org.au/ride-to-change-lives-raises-over-45000-for-maddies-vision-at-united-energy-around-the-bay-2024/) - On Sunday October 6, Maddie Riewoldt’s Vision proudly returned as the official charity partner for United Energy Around the Bay. A vibrant mix of families and seasoned cyclists set off from Albert Park for this iconic Bicycle Network event. It was a fantastic day, enjoyed by everyone who came out to support and participate in
- [2024 Patient and Family Educational Session – Psychological support and symptom management during bone marrow transplantation](https://www.mrv.org.au/2024-patient-and-family-educational-session-gene-editing-for-inherited-bone-marrow-failure-syndromes/) - We are excited to announce that registrations are now open for the 2024 Maddie Riewoldt’s Vision Patient and Family Educational Session on psychological support and symptom management during bone marrow transplantation. This session will be held virtually via Zoom on Tuesday 19th November, 7.30 pm – 8.30 pm AEDT. REGISTER HERE We are delighted to have
- [Alex Gadomski PhD Scholarship](https://www.mrv.org.au/alex-gadomski-phd-scholarship/) - The Menzies Institute for Medical Research is offering the Alex Gadomski PhD Scholarship in...
- [MRV-funded research is uncovering new strategies to encourage reverted bone marrow cells to grow and replace defective ones](https://www.mrv.org.au/mrv-funded-research-is-uncovering-new-strategies-to-encourage-reverted-bone-marrow-cells-to-grow-and-replace-defective-ones/) - For most patients with inherited Bone Marrow Failure Syndromes, the condition is incurable. Without treatment, their bone marrow cannot make the blood and platelet cells their body needs. However, a small number of inherited Bone Marrow Failure Syndrome patients experience a natural reversal of their symptoms, which is called spontaneous revertant mosaicism. Dr Parvathy Venugopal,
- [2024 CRE Expert Webinar Series on Bone Marrow Failure Syndromes - Expert Webinar 3](https://www.mrv.org.au/2024-cre-expert-webinar-series-on-bone-marrow-failure-syndromes-expert-webinar-3/) - The Maddie Riewoldt's Vision Centre of Research Excellence in Bone Marrow Biology, along with our exclusive sponsor Novartis, are proud to present the third Expert Webinar for our scientific community featuring guest speakers, Professor Mary Armanios M.D. and Professor Tracy Bryan. Expert Webinar 3 – Telomere-Mediated Bone Marrow Failure Thursday 12th September 2024 8am – 9am AEST
- [Caleb shares his fundraising tips](https://www.mrv.org.au/caleb-shares-his-fundraising-tips/) - Caleb has raised thousands of dollars for Maddie Riewoldt’s Vision last year whilst riding in the United Energy Around the Bay. This year, he will be riding in the 220-kilometre Classic Ride whilst raising funds for patients and families living with Bone Marrow Failure Syndromes. Caleb raised well-over $2000 last year and wanted to share
- [Steph Chiocci: “I’m really proud to be an ambassador for Maddie’s Vision”](https://www.mrv.org.au/steph-chiocci-im-really-proud-to-be-an-ambassador-for-maddies-vision/) - Steph Chiocci is an AFLW legend, who now plays for the St Kilda Football Club. Prior to joining St Kilda in 2023, she played for the Collingwood Football Club for seven seasons, including as co-captain from 2021. In July, she signed up as an ambassador for Maddie Riewoldt’s Vision. “I’m really proud to be an
- [Your ride can change lives at United Energy Around the Bay 2024](https://www.mrv.org.au/your-ride-can-change-lives-at-united-energy-around-the-bay-2024/) - Maddie Riewoldt’s Vision is thrilled to again be the official charity partner for United Energy Around the Bay, being held on Sunday, October 6, at Albert Park. From the Family Ride to the iconic Classic or the 300km, no matter which distance you choose, all your efforts will be rewarded once you cross the finish line and
- [Volunteer for United Energy Around the Bay](https://www.mrv.org.au/volunteer-for-united-energy-around-the-bay/) - As the exclusive charity partner of this iconic event, Maddie’s Vision will have our own marquee at the Event Village, taking donations and selling merchandise. We are looking for volunteers for three shifts on Sunday 6 October: 9.45am – 12pm 11.45am - 2pm 1.45pm-4.00pm There will be lots of fun activities within the Event Village, including
- [New Saints and Maddie’s Vision merch range to be available soon!](https://www.mrv.org.au/new-saints-and-maddies-vision-merch-range-now-available/) - We are excited to announce that we will be launching our brand-new St Kilda FC and Maddie’s Vision merch range at the end of July! Over the last nine years we have collaborated with our partners at the Saints to design merch which showcases both of our brands and helps raise awareness of Bone Marrow
- [Hugo’s inspiring ride raises $28,850 for Maddie Riewoldt’s Vision](https://www.mrv.org.au/hugos-inspiring-ride-raises-28850-for-maddie-riewoldts-vision/) - In April, 11-year-old Hugo embarked on a lifetime challenge by cycling 350 kilometres along the east coast of Tasmania to support his mate Will, who has been diagnosed with Aplastic Anaemia, and raise vital funds for Maddie’s Vision. You can read about his inspiring journey HERE. In June, Maddie Riewoldt’s Vision CEO Amy Coote presented
- [2024 CRE Expert Webinar Series on Bone Marrow Failure Syndromes](https://www.mrv.org.au/2024-cre-expert-webinar-series-on-bone-marrow-failure-syndromes/) - In May, the Maddie Riewoldt’s Vision Centre of Research Excellence in Bone Marrow Biology, along with our exclusive sponsor Novartis, were proud to present the inaugural Expert Webinar for our scientific community, featuring international guest speaker Dr Austin Kulasekararaj. Austin is a consultant haematologist at King’s College Hospital and an honorary senior clinical lecturer at King’s
- [2024 Patient and Family Educational Session was "11/10" for families ](https://www.mrv.org.au/2024-patient-and-family-educational-sessions/) - We were delighted to host our first virtual Patient and Family Educational Session for 2024, focusing on Aplastic Anaemia on Wednesday, 29 May. We secured three leading haematology experts who provided an introduction to Aplastic Anaemia and the role of transplantation in adult and paediatric patients. • Dr Lucy Fox – Haematologist, Peter MacCallum Cancer Centre
- [2024 CRE Expert Webinar on Bone Marrow Failure Syndromes](https://www.mrv.org.au/2024-cre-expert-webinar-on-bone-marrow-failure-syndromes/) - The Maddie Riewoldt's Vision Centre of Research Excellence in Bone Marrow Biology, along with our exclusive sponsor Novartis, are proud to present the second Expert Webinar for our scientific community featuring guest speaker, Professor Alan Warren. Expert Webinar 2 – Shwachman-Diamond SyndromeThursday 25th July 20244pm – 5pm AEST Virtual, via Zoom (link will be provided
- [2024 Patient and Family Educational Session - Diamond-Blackfan Anaemia](https://www.mrv.org.au/2024-patient-and-family-educational-session-diamond-blackfan-anaemia/) - We are excited to announce that registrations are now open for the 2024 Maddie Riewoldt’s Vision Patient and Family Educational Session on Diamond-Blackfan Anaemia. This session will be held virtually via Zoom on Wednesday 31 July, 7.30 pm – 8.30 pm. REGISTER HERE We are delighted to have secured the following experts who will provide
- [2023 National Symposium on Bone Marrow Failure Syndromes](https://www.mrv.org.au/2023-national-symposium-on-bone-marrow-failure-syndromes/) - Maddie Riewoldt's Vision was proud to hold the 2023 Maddie Riewoldt's National Symposium on Bone Marrow Failure Syndromes in Melbourne from Saturday October 14 - Sunday October 15 at the Victorian Comprehensive Cancer Centre. Our scientific symposium included international experts Dr Sharon Savage (Clinical Director of the Division of Cancer Epidemiology and Genetics National Cancer
- [World Rare Disease Day 2024](https://www.mrv.org.au/world-rare-disease-day-2024/) - Rare Disease Day, held this year on February 29, is a global movement that aims to recognise and raise awareness for the 300 million people worldwide who are living with a rare disease, along with their families and caregivers. Bone Marrow Failure Syndromes are rare diseases with 160 people newly diagnosed in Australia each year.
- [Join our team - Project Coordinator, Centre of Research Excellence in Bone Marrow Biology](https://www.mrv.org.au/project-coordinator-cre/) - Join the Maddie Riewoldt's Vision team and make a difference to the lives of people living with Bone Marrow Failure Syndromes and their families. As the Project Co-ordinator for the Maddie Riewoldt’s Vision Centre of Research Excellence in Bone Marrow Biology (CRE), you will support the delivery and growth of our research project portfolio to
- [Join the Maddie’s Vision Cents2Bills Fundraising Program](https://www.mrv.org.au/join-the-maddies-vision-cents2bills-fundraising-program/) - At Maddie Vision, we're making regular giving easier than ever, and we want you to be a part of it! Now you can support Maddie’s Vision through Cents2Bills, which will enable you to help Bone Marrow Failure Syndrome patients and families by rounding up everyday purchases. Discover the ease of fundraising With Cents2Bills, supporting our
- [NHMRC Ideas Grant increases funding for Bone Marrow Failure Syndrome research](https://www.mrv.org.au/nhmrc-ideas-grant-national-increases-leveraged-funding/) - Dr Vashe Chandrakanthan, Maddie's Vision Fellow and a member of our Centre of Research Excellence in Bone Marrow Biology, has received an NHMRC Ideas Grant for his project, "Generation of Long-term Human Haematopoietic Stem Cells from Endothelium for Regenerative Medicine Solutions", with funding to commence this year. Dr Chandrakanthan’s grant application was based on the
- [Transform empty cans into hope for patients and families](https://www.mrv.org.au/transform-empty-cans-into-hope-for-patients-and-families/) - Thanks to Victoria's Container Deposit Scheme, you can now turn your empty drink containers into hope for patients living with Bone Marrow Failure Syndromes and their families. Every container donated can result in a 10c donation to Maddie's Vision, helping us fund vital research and support services that patients and their families urgently need. How
- [Increased support for patients and families in Tasmania](https://www.mrv.org.au/support-expanded-in-tasmania-thanks-to-the-alex-gadomski-fellowship-and-maddies-vision/) - We are thrilled to announce that thanks to the efforts of The Alex Gadomski Fellowship and Maddie Riewoldt's Vision, the Haematology Clinical Nurse Consultant role at the Royal Hobart Hospital is expanding from 3 to 5 days a week. This expansion will support more Bone Marrow Failure Syndrome patients and families throughout Tasmania. The Haematology
- [Maddie’s Month raises $100,000 for Bone Marrow Failure Syndrome research and support!](https://www.mrv.org.au/maddies-month-raises-100000-for-bone-marrow-failure-syndrome-research-and-support/) - We’re thrilled to share that thanks to our partners at Flavorite and with the support of Coles Supermarkets, Maddie’s Month has raised another $100,000 for Bone Marrow Failure Syndromes research and support! Since Maddie’s Month started eight years ago, the campaign has raised $800,000 for Maddie Riewoldt's Vision, as well as raising national awareness of these
- [Support Hugo's ride!](https://www.mrv.org.au/support-hugos-ride/) - Young Hugo is gearing up for the ride of a lifetime this April, cycling along the entire east coast of Tasmania and covering just under 350 kilometres to raise awareness and funds for Bone Marrow Failure Syndrome research and support. Hugo is riding to support his friend Will, who has Aplastic Anaemia. You can support
- [Scientific Advisory Committee - Call for new members](https://www.mrv.org.au/scientific-advisory-committee-call-for-new-members/) - Maddie’s Vision is seeking two new members to join the SAC in 2024.
- [Community support shines bright](https://www.mrv.org.au/community-support-shines-bright/) - Thank you to our generous community fundraisers for supporting Maddie's Vision Our community of supporters is at the heart of everything we do at Maddie's Vision. Our heartfelt gratitude to the community groups who get together and fundraise to find better treatments, cures and support options for patients with Bone Marrow Failure Syndromes and their
- [Collaboration and innovation shine at the Maddie Riewoldt’s Vision National Symposium on Bone Marrow Failure Syndromes](https://www.mrv.org.au/bmfs_symposium_news/) - On October 13-15, the Maddie Riewoldt’s Vision Centre of Research Excellence in Bone Marrow Biology was proud to host the 3rd National Symposium on Bone Marrow Failure Syndromes. It was an occasion like no other, brimming with collaboration, inspiration, and innovation. The symposium brought together international and national experts who shared their cutting-edge research, insights,
- [Maddie's Match #8](https://www.mrv.org.au/maddies-match-8/) - This August, the St Kilda Football Club hosted the 8th Maddie's Match between St Kilda and Richmond at Marvel Stadium. This match is a fan favourite for both St Kilda and Richmond supporters and is an important annual platform to raise further awareness of Bone Marrow Failure Syndromes, and funds to ensure Maddie’s Vision can
- [Revolutionising Bone Marrow Failure Syndrome treatment: The EMBRACE study provides tailored care for over 400 Australians](https://www.mrv.org.au/embrace_news/) - The Maddie Riewoldt's Vision-funded Evaluating MultidisciplinaRy Bone maRrow fAilure CarE (EMBRACE) study has provided over 400 Australians with Bone Marrow Failure Syndromes access to an evidenced-based model of care that provides tailored treatment targeted to their individual needs. EMBRACE measures the impact of providing Australian patients with bone marrow failure an accurate genetic diagnosis, up-to-date
- [Riding to change lives at United Energy Around the Bay](https://www.mrv.org.au/riding-to-change-lives-at-united-energy-around-the-bay/) - On Sunday, October 8, a vibrant crowd of over 7000 riders, ranging from families to seasoned cyclists, eagerly set off from Albert Park for Bicycle Network's iconic United Energy Around the Bay. As the official charity partner for the event, the Maddie's Vision team and volunteers were present at the event village, meeting the riders,
- [Supporting patients and families through connection and sharing lived experiences: Maddie’s Vision launches Peer Support program](https://www.mrv.org.au/peersupportlaunched/) - Maddie Riewoldt’s Vision is committed to providing patients and families impacted by Bone Marrow Failure Syndrome with the best support and resources available as they navigate this incredibly difficult journey. Earlier this year, many members of our patient and family community participated in a survey to determine the need for a new Peer Support Program
- [Coca-Cola Australia Foundation grant in memory of Jack ](https://www.mrv.org.au/coca-cola-australia-foundation-grant-in-memory-of-jack/) - We’re thrilled to announce that Maddie’s Vision has been awarded a Coca-Cola Australia Foundation (CCAF) grant, which we applied for in memory of Jack McIlvar, who passed away from Aplastic Anaemia in 2021.
- [Congratulations to Maddie's Vision Fellowship recipient Dr Vashe Chandrakanthan](https://www.mrv.org.au/congratulations-to-maddies-vision-fellowship-recipient-dr-vashe-chandrakanthan/) - We're thrilled to announce that Developmental Stem cell Biologist Dr Vashe Chandrakanthan, from the South Australian Health and Medical Research Institute, The University of Adelaide, is the recipient of the Grant Round 2, 2022 Maddie’s Vision Fellowship for his project: “Discovery of novel niche factors to improve long-term stem cell transplantation in bone marrow failure syndromes”. For many
- [Big grins as Saints show their support with team photo](https://www.mrv.org.au/big-grins-as-saints-show-their-support-with-team-photo/) - What a fun day with St Kilda Football Club! Young Zahra, who has had a big few years after being diagnosed with Myelodysplastic Syndrome, visited RESA park to meet the team for a photo. Zahra charmed everyone with her warm and bubbly personality - even at one point politely requesting she be called Elsa, after
- [This is your ride! Maddie's Vision joins United Energy Around the Bay](https://www.mrv.org.au/this-is-your-ride-maddies-vision-joins-united-energy-around-the-bay/) - Maddie Riewoldt's Vision is thrilled to announce we are the official charity partner for United Energy Around the Bay, raising awareness and funds for those impacted by Bone Marrow Failure Syndromes. On Sunday, 8 October in Melbourne, riders of all abilities will come together for the iconic United Energy Around the Bay. By signing up
- [Measure in Love for Larson – A Pop-Up Piano Bar](https://www.mrv.org.au/measure-in-love-for-larson-a-pop-up-piano-bar/) - When Larson was diagnosed with a Bone Marrow Failure Syndrome, the Horsham community gathered around him and his parents with a beautiful event to raise awareness and funds for research - the Measure in Love for Larson Pop Up Piano Bar. Parents Erin and Chris share their story: “The best and most beautiful things in
- [Foxtel supports Maddie Riewoldt’s Vision with campaign](https://www.mrv.org.au/foxtel-supports-maddie-riewoldts-vision-with-campaign/) - Airing over Summer, this television campaign created and produced by Foxtel Creative raises awareness of Bone Marrow Failure Syndromes. We have something very special to share. Our friends at Foxtel Group have created an incredible community awareness advertisement for Maddie Riewoldt's Vision, currently airing on Foxtel. Featuring patients and family members impacted by Bone Marrow Failure Syndromes,
- [Maddie's Month is back](https://www.mrv.org.au/maddies-month-is-back/) - Help change a life one bite at a time this Maddie's Month
- [Maddie's Month raises $100,000 for research](https://www.mrv.org.au/maddies-month-raises-100000-for-research/) - We're thrilled to share that thanks to our partners at Flavorite, Maddie’s Month has raised another $100,000 for Bone Marrow Failure Syndromes research! Since Maddie’s Month started seven years ago, the campaign has raised $700,000 for vital research. Thank you to everyone who supported Maddie’s Vision by picking up a special purple pack of Flavorite tomatoes
- [The Purple Ladies Lunch 2019](https://www.mrv.org.au/the-purple-ladies-lunch-2019/) - Maddie Riewoldt's Vision supported by Mercedes Benz Brighton is delighted to invite you to The Purple Ladies Lunch to be held at Canvas House on Friday 11th October 2019.
- [Maddie's Month 2019](https://www.mrv.org.au/maddies-month-2019/) - Raymond Capaldi from Wonder Pies and Sophie Cookes from Cookes Food have created their ‘flavorite’ recipe to inspire home cooking during Maddie’s Month this November.
- [Australian Marrow Failure Biobank Preliminary Application](https://www.mrv.org.au/australian-marrow-failure-biobank-preliminary-application/) - Maddie Riewoldt’s Vision is delighted to announce the Australian Marrow Failure Biobank (AMFB) Preliminary Application is now open.
- [Maddie’s Shield #4 Janz Marquee](https://www.mrv.org.au/maddies-shield-4-janz-marquee/) - Maddie Riewoldt's vision together with Prahran cricket club invite you to join us in the Jansz Marquee for Maddie's Shield #4
- [Five Years of Maddie's Legacy](https://www.mrv.org.au/five-years-of-maddies-legacy/) - It’s been five years since Maddie Riewoldt lost her life in her fight against Bone Marrow Failure, but her legacy lives on stronger than ever.
- [A Reflection 2015 - 2019: Maddie's Match](https://www.mrv.org.au/a-reflection-2015-2019-maddies-match/) - On Sunday 5th April, 2020, we were supposed to celebrating 5 years of Maddie's Match with the teams at St Kilda and Richmond Football Clubs.
- [A Message From Our Chairman, Nick Riewoldt](https://www.mrv.org.au/a-message-from-our-chairman-nick-riewoldt/)
- [Grant Round 1 2020](https://www.mrv.org.au/grant-round-1-2020/) - Unfortunately, due to the COVID-19 pandemic and subsequent restrictions on all fundraising events and activities, our Grant Round 1 2020, planned to open on May 1, will not be proceeding.
- [Maddie's Vision Hand Sanitiser](https://www.mrv.org.au/maddies-vision-hand-sanitiser/) - As per the Department of Health, Australia website “Everyone can slow the spread of COVID-19 by washing their hands frequently. Wash your hands often with soap and water. Use alcohol-based hand sanitisers”.
- [Oscar - a very special dog](https://www.mrv.org.au/oscar-a-very-special-dog/) - Fiona Riewoldt speaks about how Oscar was with Maddie all the way through her fight and remains an important part of their family.
- [Maddie's Match 2020](https://www.mrv.org.au/maddies-match-2020/) - Five years of making a difference
- [Bloody Long Run- Tasmania](https://www.mrv.org.au/bloody-long-run-tasmania/) - A team of 8 ran 300km over 3 days to raise funds for the Alex Gadomsky Fellowship
- [Patient and Family Forum](https://www.mrv.org.au/patient-and-family-forum/) - Our inaugural Patient and Family Forum, held on Friday 28 August, was attended by nearly 150...
- [Grant Round 1, 2021](https://www.mrv.org.au/grant-round-1-2021/) - Grand Round 1, 2021, opens February 1. Maddie's Vision is delighted to offer funding....
- [A Message from our Chairman, Nick Riewoldt. Oct 2020](https://www.mrv.org.au/a-message-from-our-chairman-nick-riewoldt-oct-2020/) - Maddie Riewoldt Founder and Chairman, Nick, updates our community and sends an....
- [Madies Month #5 2020](https://www.mrv.org.au/madies-month-5-2020/) - TWO FAMILIES UNITE TO LEAVE A LASTING LEGACY: The fifth year of the fundraising....
- [Maddie's Month a success](https://www.mrv.org.au/maddies-month-a-success/) - Together we have managed to raise $100,000 in support of vital research in to Bone Marrow...
- [First Alex Gadomski PhD Scholarship recipient announced](https://www.mrv.org.au/first-alex-gadomski-phd-scholarship-recipient-announced/) - Maddie Riewoldt's Vision and the Menzies Institute for Medical Research at the University of....
- [Welcome to our new CEO](https://www.mrv.org.au/welcome-to-our-new-ceo/) - The Board of Maddie's Vision announces the appointment of their new CEO
- [The Purple army returned to Marvel](https://www.mrv.org.au/the-purple-army-returned-to-marvel/) - Maddie's Match returned to Marvel Stadium once again with a sea of purple
- [Gunn Family Women in Haematology Fellowship](https://www.mrv.org.au/gunn-family-women-in-haematology-fellowship/) - Maddie's Vision, the Snowdome Foundation and the Gunn Family are proud to announce our....
- [The Bloody Good Dinner](https://www.mrv.org.au/the-bloody-good-dinner/) - It will be bloody good to see you all again
- [Federal Government awards $3M to inherited Bone Marrow Failure Syndromes research project](https://www.mrv.org.au/federal-government-awards-3m-to-inherited-bone-marrow-failure-syndromes-research-project/) - This is the most exciting research news for patients with inherited bone marrow failure....
- [Gunn Family Fellowship recipient announced](https://www.mrv.org.au/gunn-family-fellowship-recipient-announced/) - Maddie Riewoldt's Vision, the Snowdome Foundation and the Gunn Family are thrilled to...
- [Grant Round 2, 2021, opens October 1](https://www.mrv.org.au/grant-round-2-2021-opens-october-1/) - Maddie Riewoldt's Vision is delighted to announce two fellowships offerings, including our...
- [Cooking for Maddie - Is Nick Riewoldt the next MasterChef?](https://www.mrv.org.au/cooking-for-maddie-is-nick-riewoldt-the-next-masterchef/) - Have you been watching Nick Riewoldt on MasterChef? He's already the winner for us. We are so proud he's competing to win $100,000 for Maddie Riewoldt's Vision, continuing his sister Maddie's fight for better outcomes and cures for people with Bone Marrow Failure Syndromes. And judging by his top four spot on Monday night for the
- [Maddie's Month 2021: How tomatoes and capsicums are making a big difference](https://www.mrv.org.au/maddies-month-2021-how-tomatoes-and-capsicums-are-making-a-big-difference/) - For the 6th year in a row, Australians can make a big difference to people with Bone Marrow Failure Syndromes just by popping a bunch of Flavorite tomatoes or capsicums in their weekly shop at Coles. For the month of November, 10c from every specially marked pack will go to Maddie's Vision. Just look out for the
- [Nick Riewoldt wins MasterChef in honour of Maddie](https://www.mrv.org.au/nick-riewoldt-wins-masterchef-in-honour-of-maddie/) - What a night! Nick Riewoldt was crowned the winner of Celebrity MasterChef. An unexpected but thrilling highlight of 2021. Nick told viewers that his sister Maddie was "a big part of the motivation for coming on MasterChef because she passed away in 2015 from bone marrow failure. She was 26. She was a huge advocate
- [Captain Courageous joins forces with Maddie's Vision to supercharge the mission](https://www.mrv.org.au/captain-courageous-joins-forces-with-maddies-vision-to-supercharge-the-mission/) - Captain Courageous joins forces with Maddie's Vision to supercharge our shared mission to...
- [Meet our latest Fellowship recipients: Dr Rachel Koldej and Rachel Edwards](https://www.mrv.org.au/meet-our-latest-fellowship-recipients-dr-rachel-koldej-and-rachel-edwards/) - Our Centre of Research Excellence (CRE) has commenced the new year with a spectacular...
- [Home auction for Maddie's Vision is a true labour of love](https://www.mrv.org.au/home-auction-for-maddies-vision-is-a-true-labour-of-love/) - We're excited for the house charity auction, raising money for Maddie's Vision! With Fairhaven...
- [Maddie's Vision charity home sells for $750,000!](https://www.mrv.org.au/maddies-vision-charity-home-sells-for-750000/) - Last Saturday, the charity home sold with all procedes going to Maddie's Vision to fund...
- [Dr Astrid Glaser - inaugural Captain Courageous grant recipient](https://www.mrv.org.au/dr-astrid-glaser-inaugural-captain-courageous-grant-recipient/) - We are thrilled to announce that Grant Round 1, 2022 Captain Courageous Fellowship has...
- [Gift for Gab Charity Walk](https://www.mrv.org.au/gift-for-gab-charity-walk/) - The Gift for Gab charity walk is back this October to raise money for Bone Marrow Failure...
- [Welcome to our new CEO, Amy Coote](https://www.mrv.org.au/welcome-to-our-new-ceo-amy-coote/) - The Board of Maddie's Vision is delighted to introduce our new CEO, Amy Coote. Amy will be officially joining us on 15 November, and we're excited to welcome her to the Maddie's Vision family. Amy is a For-Purpose executive leader, Founding Executive of one of Australia's leading giving circles and an experienced Board Director. For
- [A successful Bloody Good Dinner](https://www.mrv.org.au/a-successful-bloody-good-dinner/) - Wasn't the Bloody Good Dinner an incredible night at the Botanica Marquee in the Royal Botanic Gardens? Together, 300 guests, plus some lovely raffle ticket purchasers, raised an incredible $710,000 for the Snowdome Foundation and Maddie's Vision! Thanks to you, the 2022 Bloody Good Dinner was our most successful event by far. Guests kicked off
- [New Investigator PhD Scholarship](https://www.mrv.org.au/new-investigator-phd-scholarship/) - We are thrilled to announce that the New Investigator PhD Scholarship has been awarded to Haematology Registrar Dr Daniel North. Dr Daniel North’s project title is ‘High resolution definition of the mechanisms of poor graft function following allogeneic haematopoietic stem cell transplantation’. Bone marrow transplants are often used as a treatment for Bone Marrow Failure
- [$1 million to Maddie Riewoldt’s vision for clinical trial of new therapies for bone marrow failureMaddie's Match 2020](https://www.mrv.org.au/1-million-to-maddie-riewoldts-vision-for-clinical-trial-of-new-therapies-for-bone-marrow-failuremaddies-match-2020/) - From the Hon. Greg Hunt MP, Minister for Health 27 June 2020 The Australian Government will provide more than $1 million to Maddie Riewoldt’s Vision, to support a clinical trial of new therapies for young patients who cannot make enough blood cells due to bone marrow failure. The RESELECT clinical trial will test a number

## Pages

- [Home](https://www.mrv.org.au/) - Maddie Riewoldt’s Vision funding research to discover cures for Bone Marrow Failure Syndromes. Donate now to help us find answers for patients and families.
- [Grant and Fellowship Opportunities](https://www.mrv.org.au/research/grants-scheme/) - Maddie’s Vision periodically offer Grant Rounds to build capacity and support outstanding researchers in the areas of Bone Marrow Failure Syndromes. Past Opportunities Maddie Riewoldt's Vision 2026 Grant Round Applications have now closed Maddie Riewoldt’s Vision was proud to announce three Fellowship opportunities in our 2026 Grant Round, designed to accelerate research and improve outcomes
- [2027 National Symposium on Bone Marrow Failure Syndromes](https://www.mrv.org.au/2027-national-symposium-on-bone-marrow-failure-syndromes/) - SAVE THE DATE On behalf of the Maddie Riewoldt's Vision Centre of Research Excellence in Bone Marrow Biology, we are proud to announce that the 5th National Symposium on Bone Marrow Failure Syndromes will be held at the Queensland Children’s Hospital from 28-30 May 2027. Maddie Riewoldt's Vision is dedicated to advancing research and expanding knowledge
- [Past National Symposiums](https://www.mrv.org.au/research/national-symposiums/) - THANK YOU FOR JOINING US! Maddie Riewoldt’s Vision extends a heartfelt thank you to everyone who participated in the 4th National Symposium on Bone Marrow Failure Syndromes, held from 23–25 May 2025 at the Victorian Comprehensive Cancer Centre in Melbourne. Thanks to the generous support of our partners, we were proud to offer free registration
- [Patient & Family Educational Sessions](https://www.mrv.org.au/get-support/education/) - Maddie Riewoldt’s Vision is committed to holding regular educational events for patients living with Bone Marrow Failure Syndromes and their families to share knowledge, provide support and strengthen our collaborative networks. Upcoming Events Patient and Family Educational Sessions 2026 We are also pleased to announce that our next Patient and Family Educational Session will be
- [Bone Marrow Failure Syndromes Peer Support Program](https://www.mrv.org.au/get-support/bone-marrow-failure-syndromes-peer-support-program/) - Facilitated by a trained peer moderator and clinically supported by our Tele-Support Service Nurses, the Maddie Riewoldt’s Vision Peer Support Program creates a safe and confidential virtual space to share lived experiences, discuss challenges, provide support to others, offer advice on navigating the treatment journey and share the resources and services that made a difference.
- [Centre of Research Excellence](https://www.mrv.org.au/research/centre-of-research-excellence/) - Maddie’s Vision has established the first Centre of Research Excellence in Bone Marrow Biology in Australia, dedicated to promoting the collaboration of expert researchers around a common purpose, and providing the technical and peer support necessary for catalysing innovation across specialisations, ideas and projects in Bone Marrow Failure Syndromes. The Maddie’s Vision Centre of Research Excellence in
- [Past Scientific Events](https://www.mrv.org.au/research/past-scientific-events/) - Maddie Riewoldt’s Vision is committed to holding regular scientific and patient events to share knowledge of the latest research in Bone Marrow Failure Syndromes and to strengthen our collaborative networks. 2026 CRE Expert Webinar Series on Bone Marrow Failure Syndromes Webinar 1 – Thursday 5th March 2026 Haematological malignancy development in Shwachman-Diamond Syndrome The Maddie Riewoldt's Vision Centre of Research Excellence
- [Corporate Partnerships](https://www.mrv.org.au/get-involved/corporate-partnerships/) - Maddie Riewoldt’s Vision supports people with Bone Marrow Failure Syndromes and their families thanks to the generous support of our community and corporate partnerships. By partnering with Maddie Riewoldt’s Vision, you’re supporting the only organisation in Australia dedicated to improving the lives of Bone Marrow Failure Syndrome patients and families with innovative research and support.
- [Learn](https://www.mrv.org.au/learn/) - Learn about Bone Marrow Failure Syndromes and how Maddie's Vision supports patients and families living with Bone Marrow Failure Syndromes.
- [Scientific Events](https://www.mrv.org.au/research/upcoming-scientific-events/) - Maddie Riewoldt’s Vision is committed to holding regular scientific events to share knowledge of the latest research in Bone Marrow Failure Syndromes and to strengthen our collaborative networks. Upcoming Events 2026 CRE Expert Webinar Series on Bone Marrow Failure Syndromes - Expert Webinar 2 GATA2 Coming of Age: From Discovery to Haematological Evolution The Maddie Riewoldt's Vision Centre of Research Excellence (CRE) in
- [For Health Professionals](https://www.mrv.org.au/get-support/for-health-professionals/) - Maddie's Vision provides information and support for patients diagnosed with Bone Marrow Failure Syndromes and their families To all healthcare colleagues, thank you very much for taking time to visit this webpage to find support, resources and information for your patients. The Maddie’s Vision Tele-Support Service provides continuous support to patients and their families impacted
- [Research](https://www.mrv.org.au/research/) - Maddie Riewoldt’s Vision is committed to funding high quality research projects for Bone Marrow Failure Syndromes. Maddie’s Vision Centre of Research Excellence
- [Get Support](https://www.mrv.org.au/get-support/) - Maddie's Vision support patients living with Bone Marrow Failure Syndromes and their families. Talk to Tele-Support Service Nurse for helpful information and resources.
- [Our Supporters](https://www.mrv.org.au/about-us/our-supporters/) - Partnerships are the foundation of everything we do. Maddie's Vision relies heavily on passionate, connected people and businesses to achieve our impact. We are so grateful to all of our partners for joining us in our fight against Bone Marrow Failure. Fundraising Partners The Alex Gadomski Fellowship Visit Website Jane's Match Corporate Partners Flavorite Visit
- [Collaborative Partners](https://www.mrv.org.au/about-us/collaborative-partners/) - Maddie Riewoldt's Vision takes great pride in the strong partnerships we’ve built with like-minded organisations, allowing us to broaden our support for patients and families. We are incredibly grateful to the following organisations for their continued collaboration and support. Arrow Bone Marrow Transplant Foundation Visit Website Camp Quality Visit Website Carers Australia Visit Website Challenge
- [Past Patient & Family Educational Sessions](https://www.mrv.org.au/get-support/education/past-patient-family-events/) - Maddie Riewoldt’s Vision is committed to holding regular scientific and patient events to share knowledge of the latest research in Bone Marrow Failure Syndromes and to strengthen our collaborative networks. Patient and Family Educational Sessions 2026 Session 3 - Thursday 23 JulyUnderstanding Shwachman-Diamond Syndrome: Care, Monitoring and Emerging Research Maddie Riewoldt’s Vision was proud to
- [Events](https://www.mrv.org.au/events/) - Discover and join us at our signature events including 'Maddie's Match', 'The Bloody Good Dinner' and more to raise awareness. Find out more.
- [Scientific Advisory Committee](https://www.mrv.org.au/research/scientific-advisory-committee/) - The Maddie’s Vision Scientific Advisory Committee, comprised of Australia’s preeminent adult and paediatric haematologists and scientific researchers, reviews and awards funding to research projects that are criteria specific and scientific merit-based via a competitive and transparent twice-yearly granting round. Professor David Ritchie Read bio Megan Bywater Read bio Dr Catherine Carmichael Read bio Associate Professor
- [Educational Outreach Committee](https://www.mrv.org.au/educational-outreach-committee/) - Maddie Riewoldt's Vision has established an Educational Outreach Committee to support the development and delivery of a national education program focused on Bone Marrow Failure Syndromes. The Committee brings together members from Victoria, Queensland, Western Australia and Tasmania, with expertise across haematology, oncology, bone marrow transplantation, nursing, genetic counselling, research, education and lived experience. This
- [About Maddie's Vision](https://www.mrv.org.au/about-us/maddie-vision/) - Maddie Riewoldt’s Vision funds research that accelerates next generation prevention, diagnosis and treatment of Bone Marrow Failure Syndromes. Learn more
- [Tele-Support Service](https://www.mrv.org.au/get-support/tele-support-nurse-service/) - Maddie’s Vision supports patients living with Bone Marrow Failure Syndromes and their families As Bone Marrow Failure Syndromes are rare, many patients and families feel overwhelmed, isolated and in need of support when they receive a diagnosis and throughout treatment. Our Tele-Support Service is the only available support for Bone Marrow Failure Syndrome patients in
- [Our Impact](https://www.mrv.org.au/about-us/our-impact/) - Discover how Maddie's Vision supports patients and families living with Bone Marrow Failure Syndromes through funding research projects. Learn more
- [Board](https://www.mrv.org.au/about-us/board/) - Maddie Riewoldt's Vision board is made up of highly qualified individuals working towards better outcomes for research and treatments for Bone Marrow Failure Syndromes
- [Code of Conduct Policy](https://www.mrv.org.au/code-of-conduct-policy/) - Maddie's Vision - Code of Conduct Policy DOWNLOAD HERE
- [Working with Children & Vulnerable People Policy](https://www.mrv.org.au/working-with-children-vulnerable-people-policy/) - Maddie's Vision - Working with Children & Vulnerable People Policy DOWNLOAD HERE
- [National Bone Marrow Failure Syndrome Awareness Week - Resource Hub](https://www.mrv.org.au/get-involved/national-bone-marrow-failure-syndrome-awareness-week/) - Resource Hub Returning for its second year, the 2026 National Bone Marrow Failure Syndrome Awareness Week will take place from 2–8 March, aiming to build national awareness of Bone Marrow Failure Syndromes and their life-threatening impact on thousands of families across Australia. This initiative is calling on all Australians to “Raise Your Voice, Save Lives,
- [About Us](https://www.mrv.org.au/about-us/) - Maddie Riewoldt’s Vision funds research that accelerates next generation prevention, diagnosis and treatment of Bone Marrow Failure Syndromes. Learn more
- [Annual Reports](https://www.mrv.org.au/about-us/annual-reports/) - Maddie Riewoldt's Vision archive of Annual Reports available to download.
- [Maddie's Month](https://www.mrv.org.au/maddies-month/) - 10 Years of Impact:Maddie’s Month set to raise $1 Million this November Flavorite, Australia’s largest glasshouse grower of fresh fruit and vegetables, is donating 15 cents from every pack of specially marked tomatoes and capsicums sold exclusively at Coles supermarkets to Maddie’s Riewoldt’s Vision during Maddie’s Month up to a maximum of $100,000, funding vital research and support
- [Contact](https://www.mrv.org.au/contact/) - Join the fight against Bone Marrow Failure Syndromes. Get in touch If you’d like to connect with Maddie Riewoldt’s Vision.
- [Executive](https://www.mrv.org.au/executive/) - Meet the Maddie Riewoldt's Vision executive leadership team fighting to gain vital funds for research to accelerate new treatments for Bone Marrow Failure Syndromes
- [National Symposium Accommodation Options](https://www.mrv.org.au/research/national-symposiums/national-symposium-accommodation-options/) - Maddie’s Vision is thrilled to have secured the following discount rates for symposium delegates: Pullman Melbourne City Centre Delegates can book accommodation at a Business Group Discounted Rate (BGCI) available from May 20 to May 28, 2025, allowing for early arrival or an extended stay. The BGCI rate offers flexibility, including free cancellation up to
- [National Bone Marrow Failure Syndrome Awareness Week - Resource Hub v2](https://www.mrv.org.au/national-bone-marrow-failure-syndrome-awareness-week-resource-hub/) - Resource Hub National Bone Marrow Failure Syndrome Awareness Week3 - 9 March, 2025 Social Media Pack This week long campaign aims to raise awareness of Bone Marrow Failure Syndromes and their life-threatening impact on thousands of families across the country, whilst also encouraging Australians to donate blood and stem cells – which are the only
- [2023 National Symposium on Bone Marrow Failure Syndromes](https://www.mrv.org.au/research/symposium/) - Maddie Riewoldt's Vision was proud to hold the 2023 Maddie Riewoldt's National Symposium on Bone Marrow Failure Syndromes in Melbourne from Saturday October 14 - Sunday October 15 at the Victorian Comprehensive Cancer Centre. Our scientific symposium included international experts Dr Sharon Savage (Clinical Director of the Division of Cancer Epidemiology and Genetics National Cancer
- [Subscribe](https://www.mrv.org.au/subscribe/) - Register your details below to receive all the latest news, events and research initiatives by Maddie Riewoldt’s Vision delivered direct to your inbox.
- [For Caregivers](https://www.mrv.org.au/get-support/for-caregivers/) - Caring for a loved one with a Bone Marrow Failure Syndrome can be a difficult and emotional journey for the entire family. If you are making decisions on behalf of a child or a person you are caring for, finding trustworthy and accurate information can you help communicate and ask questions to make informed decisions
- [For Patients](https://www.mrv.org.au/get-support/for-patients/) - Every year, approximately 160 new cases of both acquired and inherited Bone Marrow Failure Syndromes are diagnosed in Australia, the majority of whom are paediatric and adolescent. Thousands more are living each day with the challenges of these conditions. Each syndrome is unique and treatment plans may significantly vary. After receiving a diagnosis, you may feel
- [Book an appointment with our Tele-Support Service Nurse service](https://www.mrv.org.au/get-support/tele-support-nurse-form/) - Send us a message, and our Tele-Support Service Nurse will be in contact with you to arrange an appointment time. Alternatively, you can call 0477 884 955 on Mondays, Tuesdays and Wednesdays during business hours.
- [Types of Bone Marrow Failure Syndromes](https://www.mrv.org.au/learn/bone-marrow-failure-syndromes/types-of-bone-marrow-failure-syndromes/) - There are a range of individual conditions that make up Bone Marrow Failure Syndromes. Learn about these conditions and how Maddie Riewoldt's Vision is helping.
- [Bone Marrow Failure Syndrome Support Organisations](https://www.mrv.org.au/get-support/bone-marrow-failure-support-organisations/) - If you or a loved one has been diagnosed with a Bone Marrow Failure Syndrome, the following organisations offer support and a wealth of information. We are grateful to be connected with organisations across the world who are united in the search for answers about Bone Marrow Failure Syndromes. Maddie Riewoldt's Vision Tele-Support Service Nurse
- [Give hope to patients like Larson living with Bone Marrow Failure Syndromes](https://www.mrv.org.au/get-involved/current_appeal/) - This end of financial year, your tax-deductible donation to Maddie’s Vision will create a brighter future for patients living with Bone Marrow Failure Syndromes. Your support will help fund research that will result in faster diagnosis, better treatments, tailored support and improved outcomes for patients and families impacted by Bone Marrow Failure Syndromes. Support Maddie
- [About Bone Marrow Failure Syndromes](https://www.mrv.org.au/learn/bone-marrow-failure-syndromes/) - Bone marrow is an important and complex organ, and quite literally our factory for blood cells. Healthy bone marrow works to produce new red and white blood cells and platelets every single day. What are Bone Marrow Failure Syndromes? Bone Marrow Failure Syndromes are a collection of medical conditions where the bone marrow stops working,
- [Ambassadors](https://www.mrv.org.au/about-us/ambassadors/) - Meet the Maddie Riewoldt's Vision Ambassadors who are helping the fight against Bone Marrow Failure Syndromes #FightLikeMaddie
- [Patient and Family Forums 2022 - Sponsors](https://www.mrv.org.au/patient-and-family-forums-2022-sponsors/) - Our 2022 Patient and Family virtual forums brought together some of the world’s best doctors and researchers to present the most up-to-date information for those affected by Bone Marrow Failure Syndromes. Thanks to our generous sponsors for making this event possible: Platinum sponsor Alexion Alexion is focused on providing innovative treatments to patients with life-threatening
- [National Symposium on Bone Marrow Failure Syndromes Accommodation](https://www.mrv.org.au/research/symposium/accommodation/) - Accommodation options Maddie’s Riewoldt’s Vision has secured special rates at select Melbourne Hotels for the Symposium. Novotel Melbourne on Collins Novotel Melbourne on Collins welcomes you to experience contemporary style and 4.5 star comfort in the heart of Melbourne. Located on fashionable Collins Street and directly above the upscale St Collins Lane, Melbourne's most unique
- [National Symposium on Bone Marrow Failure Syndromes Program and Abstracts Book](https://www.mrv.org.au/research/symposium/program/) - The Maddie Riewoldt’s Vision Centre of Research Excellence in Bone Marrow Biology is proud to announce the program and abstract book for our 3rd National Symposium on Bone Marrow Failure Syndromes. We are thrilled to have an outstanding line-up of international and national speakers presenting information about the latest research into improved treatments and clinical
- [National Symposium on Bone Marrow Failure Syndromes Speakers](https://www.mrv.org.au/research/symposium/national-symposium-on-bone-marrow-failure-syndromes-speakers/) - International guest speakers We are thrilled to announce the following international experts will be presenting: Ribeirão Preto School of Medicine, University of São Paulo, Brazil National Cancer Institute, United States National Guest Speakers In addition to these leading international experts, there will be a number of national speakers who are at the forefront of basic science,
- [National Symposium on Bone Marrow Failure Syndromes Partners](https://www.mrv.org.au/research/symposium/national-symposium-on-bone-marrow-failure-syndromes-partners/) - We would like to acknowledge and extend our sincere gratitude to our partners for their support and contribution towards this exciting event. Gold Partner Alexion Alexion is focused on providing innovative treatments to patients with life-threatening rare diseases for which there are few, if any, effective treatment options. Alexion established operations in Sydney in 2008
- [Our Research Strategy](https://www.mrv.org.au/research/our-research-strategy/) - Maddie Riewoldt's Vision highly reputable and esteemed Scientific Advisory Committee continues to develop a national and international research strategy for our Centre of Research Excellence.
- [Call for Abstracts - 2023 National Symposium on Bone Marrow Failure Syndromes](https://www.mrv.org.au/research/symposium/abstract-guidelines-2023/) - Abstract submissions are now open and will close at 5 pm AEST, Friday 30 June, 2023. The Symposium Steering Committee warmly encourages the submission of abstracts, particularly from early career researchers, on any aspects of basic or clinical research related to Bone Marrow Failure Syndromes. Successful abstracts will be selected for oral presentations and/or poster
- [Our volunteers are incredible!](https://www.mrv.org.au/get-involved/volunteer-with-us/) - Our volunteers are incredible! We often need volunteers to help us at events and at busy times in our Melbourne office. You could be selling merchandise, running a stall, registering people at events or helping with mailouts. We also work with volunteers who have special skill sets, such as web development, PR, accounting or design.
- [Resources](https://www.mrv.org.au/get-support/resources/) - If you or a loved one needs additional support and services on your journey with Bone Marrow Failure Syndromes, the following organisations and resources can help. Education and schooling Camp Quality Challenge Leukaemia Foundation – Education and information services Koala Kids Ronald McDonald House Charity Charlie Bell Scholarship Ronald McDonald House Charity Learning Program Financial
- [Fundraise for Us](https://www.mrv.org.au/get-involved/fundraising/) - Whether you're a club, business, school or family, there are so many ways you can support people with Bone Marrow Failure Syndromes. If you’d like to create your own personal fundraiser, setting up a page on our website is quick and easy. Creating your own fundraising page is a personal way of asking friends and
- [Get Involved](https://www.mrv.org.au/get-involved/) - Maddie's Vision is a not-for-profit organisation fighting to deliver breakthroughs in the prevention, diagnosis and treatment of Bone Marrow Failure Syndromes.
- [Fundraising Application](https://www.mrv.org.au/get-involved/fundraising/fundraising-application/) - Thank you for your interest in fundraising for Maddie Riewoldt’s Vision! With your help, we can #FightLikeMaddie to create a brighter future for people impacted by Bone Marrow Failure Syndromes. Before you submit your application, please read the Maddie Riewoldt’s Vision Fundraising Terms and Conditions: Maddie Riewoldt's Vision - Fundraising Terms and Conditions PDF 135.3kb Last
- [Give Monthly](https://www.mrv.org.au/get-involved/donate-monthly/) - Help us create a brighter future for patients living with Bone Marrow Failure Syndromes and their families. Monthly donations provide the most impact. Your monthly tax-deductible donation helps us work towards a future where Bone Marrow Failure Syndrome patients have access to the best treatments and support possible. Thanks to your support, we’ll keeping going until
- [Donate](https://www.mrv.org.au/get-involved/donate/) - Help us create a brighter future for patients living with Bone Marrow Failure Syndromes and their families. Donate online to help fund research and treatments.
- [Related Disorders](https://www.mrv.org.au/learn/bone-marrow-failure-syndromes/related-disorders/) - Learn more about Bone Marrow Failure Syndromes related disorders that can develop including Acute Myeloid Leukaemia and Myelodysplastic Syndrome.
- [Thank You](https://www.mrv.org.au/get-involved/fundraising/fundraising-application/thank-you/) - Thank You! Your fundraiser application has been received. A member of our team will be in touch. Return to Home
- [Maddie Riewoldt](https://www.mrv.org.au/learn/maddie-riewoldt/) - Maddie Riewoldt was just 26 years old when she died of complications of a Bone Marrow Failure Syndrome called Aplastic Anaemia. Learn more about Maddie Riewoldt
- [Personal Stories](https://www.mrv.org.au/learn/personal-stories/) - Read about the incredible patients and families sharing their stories with the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Projects](https://www.mrv.org.au/research/projects/) - Maddie Riewoldt's Vision fund innovative and ground-breaking medical research projects towards finding new treatments and cures for Bone Marrow Failure Syndromes

## Team Members

- [Cherrie Craike - National Coordinator - Research Programs](https://www.mrv.org.au/team-member/cherrie-craike-project-coordinator-centre-of-research-excellence-in-bone-marrow-biology/) - Cherrie holds a Diploma of Personal Injury Management and has more than 8 years’ experience in various administrative roles, most recently within the area of workers compensation claims management. Cherrie is returning to work after dedicating the last seven years to raising her two, now school aged, daughters, Maisie and Adeline. Cherrie is excited to
- [Dr John Mackintosh](https://www.mrv.org.au/team-member/dr-john-mackintosh/) - Dr John Mackintosh MBBS (Hons), BSc, FRACP, is a respiratory and lung transplant physician at the Prince Charles Hospital, Brisbane. He completed a clinical fellowship in interstitial lung disease at the prestigious Royal Brompton Hospital in London. He is a national leader in pulmonary fibrosis genetics and is chair of the quarterly Australasian Interstitial Lung
- [Jaya Soma - National Manager - Research & Patient Programs](https://www.mrv.org.au/team-member/jaya-soma/) - A clinically trained senior pharmacist (BPharm (Hons)) with more than 13 years’ experience, Jaya has forged a unique career spanning multiple settings, dedicated towards improving patient health. Her professional background includes community and hospital pharmacy, research and industry experience at Austin Health, Epworth hospital, Monash University and Servier, as well as international health experience for
- [Melissa Lawrie](https://www.mrv.org.au/team-member/melissa-lawrie/) - Melissa is a healthcare professional and brings both professional expertise and lived experience to the Educational Outreach Committee. Melissa's daughter, Cate, was diagnosed with Severe Aplastic Anaemia at the age of eight. She later developed Paroxysmal Nocturnal Haemoglobinuria (PNH) at 16 and Hodgkin lymphoma at 24. Over many years, Melissa and her family navigated lengthy
- [Craig Nichol](https://www.mrv.org.au/team-member/craig-nichol/) - Craig Nichol is a medical student at Deakin University with a strong interest in haematology and bone marrow failure syndromes. Prior to studying medicine, he completed a Bachelor of Biomedical Science (Infection and Immunity) and undertook a research placement at Peter MacCallum Cancer Centre, gaining exposure to research focused on acute myeloid leukaemia and multiple
- [Dr Eliska Furlong](https://www.mrv.org.au/team-member/dr-eliska-furlong/) - Dr Eliska Furlong is a Paediatric Clinical Haematologist based at Perth Children’s Hospital and honorary Fellow at The Kids Research Institute in Perth, Western Australia. Eliska has completed training in Paediatric Medical Oncology and holds a PhD degree dedicated to primary immunodeficiencies that she completed at the National Institute of Health and Medical Research in
- [Erin Goode](https://www.mrv.org.au/team-member/erin-goode/) - Erin is a genetic counsellor in the Haematology Genomics Clinic at the Peter MacCallum Cancer Centre/Royal Melbourne Hospital. In this role, she provides genomic care to individuals and families with inherited predispositions to haematological malignancies and bone marrow failure syndromes. Erin is actively involved in research, including recent contributions to the IBMDx and EMBRACE studies.
- [Dr Kirsten Fairfax](https://www.mrv.org.au/team-member/kirsten-fairfax/) - Kirsten is the Maddie Riewoldt’s Vision/Alex Gadomski Fellow and senior lecturer at the University of Tasmania. She leads a small team working on the immunology and genetics underpinning Bone Marrow Failure Syndromes and haematopoiesis at the School of Medicine at UTAS, as well as teaching into second and third year BioMedicine. Her research work focusses
- [Dr David Deambrosis](https://www.mrv.org.au/team-member/david-deambrosis/) - Dr David Deambrosis is a Paediatric Oncologist and Bone Marrow Transplant Physician at the Queensland Children’s Hospital in Brisbane, Australia. Dr Deambrosis completed his training at the Queensland Children’s Hospital in Brisbane, before working as a Consultant within the Transplant Units at The Royal Children’s Hospital in Manchester, UK, and Starship Children’s Hospital in Auckland,
- [Professor Jeff Szer](https://www.mrv.org.au/team-member/jeff-szer/) - Jeff Szer was the foundation Professor/Director of the Department of Clinical Haematology & Bone Marrow Transplant Service at Royal Melbourne Hospital until August 2016, when the department became a part of the Clinical Haematology Department at Peter MacCallum Cancer Centre & The Royal Melbourne Hospital. He was the foundation Group lead for Classical Haematology including
- [Dr Ashvind Prabahran](https://www.mrv.org.au/team-member/ashvind-prabahran/) - Ashvind Prabahran is a Haematologist and BMT Physician with a special interest in myeloid disorders, bone marrow failure syndromes and allogeneic stem cell transplant. After completing clinical and laboratory training in Haematology, he was awarded the Maddie Riewoldt’s Vision/Victorian Cancer Agency Travelling Fellowship. Through this fellowship he completed a PhD through the ACRF laboratory at
- [Kylie Wilson](https://www.mrv.org.au/team-member/kylie-wilson/) - Kylie is a Queensland primary school teacher, single parent and active member of her Christian community. For many years, she has been dedicated to supporting young people through education, fostering resilience, wellbeing and lifelong learning. In 2025, Kylie was diagnosed with Severe Aplastic Anaemia following months of declining health, extensive investigations and a bone marrow
- [Maddie Gilsenan](https://www.mrv.org.au/team-member/maddie-gilsenan/) - Maddie Gilsenan is Australia’s first Paediatric Bone Marrow Transplant and Cellular Therapies Nurse Practitioner, appointed to the Children’s Cancer Centre at The Royal Children’s Hospital in 2019. Maddie plays an integral role in the care of patients undergoing CAR T cell therapy, or haematopoietic stem cell transplant, with a focus on the early period post-discharge,
- [Alexandra Rivalland](https://www.mrv.org.au/team-member/alexandra-rivalland/) - Alexandra Rivalland is a Nurse Practitioner specialising in allogeneic stem cell transplantation and graft-versus-host disease (GvHD) at The Royal Melbourne Hospital and Peter MacCallum Cancer Centre. With over a decade of experience in haematology and bone marrow transplantation, she has held clinical, leadership and advanced practice roles including Registered Nurse, Clinical Nurse Specialist, Associate Nurse
- [Dr Stephanie Clugston](https://www.mrv.org.au/team-member/dr-stephanie-clugston/) - Dr Stephanie Clugston is a clinical and laboratory haematologist based at Fiona Stanley Hospital in Western Australia. Stephanie is trained as a Haematologist (Blood Disorders Specialist) and Pathologist (Haematology) and specialises in bone marrow transplantation and bone marrow failure. After completing Haematology training in Western Australia, Stephanie travelled to the Hospital Saint-Louis, in Paris, France,
- [Associate Professor Lucy Fox](https://www.mrv.org.au/team-member/associate-professor-lucy-fox/) - Lucy is a Haematologist with dual physician and pathology qualifications. She obtained her Medicine and Commerce / Science degrees at the University of Melbourne, where she also obtained a Doctorate of Medical Science. She runs the Genomic Haematology clinic at Peter MacCallum Cancer Centre/Royal Melbourne Hospital in which she cares for patients and families with
- [Lucinda Sheppard](https://www.mrv.org.au/team-member/lucinda-sheppard/) - Luci Sheppard is a marketing and communications professional with extensive experience across the not-for-profit and healthcare sectors in Australia and the United Kingdom. She brings a strong background in strategic communications, stakeholder engagement and storytelling, with a love for the written word. In 2014, Luci was diagnosed with Severe Aplastic Anaemia while living in Wales and
- [Megan Bywater](https://www.mrv.org.au/team-member/megan-bywater/) - Megan Bywater is a Senior Research Officer in the Leukaemia Research Laboratory at the QIMR Berghofer in Brisbane, Australia. During her PhD at the Peter MacCallum Cancer Centre (Melbourne) and postdoctoral studies at the University of Cambridge (UK), she utilised genetically engineered models to study cancer-associated gene expression. At QIMRB, she leads a program focussed
- [Michelle Gallaher - Chair](https://www.mrv.org.au/team-member/michelle-gallaher-chair/) - Michelle Gallaher is Managing Director of Inverion, an advisory firm helping health services and research organisations navigate AI governance and integration. She is one of Australia's most respected health technology entrepreneurs and a leading voice on the responsible adoption of AI in healthcare. Michelle's career spans clinical practice, biopharmaceutical executive leadership, peak-body stewardship, and four
- [Rachel Penny - Tele-Support Service Nurse](https://www.mrv.org.au/team-member/rachel-edwards-tele-support-service-nurse/) - Rachel is a Paediatric Nurse Educator with 30 years’ experience in caring for people with malignant and non-malignant haematology conditions. Rachel completed her post graduate Haematology nursing degree at Thames Valley University, London and is currently completing a PhD through Queensland University of Technology. Rachel is an early career nurse researcher with implementation research interests
- [Maike Baumeister - Observer](https://www.mrv.org.au/team-member/maike-baumeister-observer/) - Maike Baumeister is an Equities Research Analyst at UBS, where she provides financial analysis and investment insights across the energy sector to institutional investors. She has over a decade of experience in finance, strategy and transaction advisory, including senior roles with APA Group and EY in Australia and Germany. Maike holds both a Bachelor and
- [Professor Andrea Henden](https://www.mrv.org.au/team-member/dr-andrea-henden/) - Professor Andrea Henden is a clinical Haematologist and early career research scientist. She completed her clinical and laboratory Haematology fellowships in 2013 and is employed as a senior staff specialist in Haematology and Bone Marrow Transplant at the Royal Brisbane and Women's Hospital in Queensland. She gained her PhD in 2019, examining transplantation immunology and
- [Mei Ling Yeh - Tele-Support Service Nurse](https://www.mrv.org.au/team-member/mei-ling-yeh/) - Mei Ling Yeh is a dedicated and highly experienced paediatric oncology nurse with over 20 years of clinical practice. She specialises in delivering patient- and family-centred care, with a strong focus on haemopoietic stem cell transplant (HSCT) and paediatric palliative care. Currently, Mei Ling serves as the Tele-Support Service Nurse at Maddie Riewoldt’s Vision, supporting patients
- [Professor David Ritchie](https://www.mrv.org.au/team-member/prof-david-ritchie/) - Director CRE in Bone Marrow Biology & Chair Scientific Advisory Committee Professor David Ritchie is a Haematologist and Bone Marrow transplant specialist at the Royal Melbourne Hospital. He undertook his medical training and PhD in Immunology at the University of Otago before moving to Melbourne 20 years ago. He is head of the Bone Marrow
- [Associate Professor Tina Carter](https://www.mrv.org.au/team-member/a-prof-tina-carter/) - MBBS FRACP (Paediatrics) Ph D (UWA) and FRCPA Tina Carter is the head of the Paediatric haematology service at Perth Children’s Hospital in WA. She is a clinical and laboratory haematologist and has been involved in clinical trials and translational research for over 25 years. Her clinical work in haematology includes the diagnosis of inherited
- [Associate Professor Rachel Koldej](https://www.mrv.org.au/team-member/associate-professor-rachel-koldej/) - Associate Professor Rachel Koldej is Senior Scientist in the ACRF Translational Research Laboratory at Royal Melbourne Hospital. She obtained her PhD in the development of lentiviral gene therapy vector technology and completed a postdoctoral fellowship with Dr Arthur Nienhuis at St Jude Children’s Research Hospital, Memphis, TN, USA in the development of lentiviral gene therapy
- [Dr Lorna McLeman](https://www.mrv.org.au/team-member/dr-lorna-mcleman/) - Dr McLeman is a Paediatric Oncologist trained at the Royal Children's Hospital in Melbourne with a special interest in bone marrow transplant and advanced stem cell therapies including gene editing. Dr McLeman is a PhD candidate with the University of Melbourne and a member of the Genome Stability Unit at St Vincent's Institute of Medical
- [Lydia Azel - Partnerships & Events Coordinator](https://www.mrv.org.au/team-member/lydia-azel-partnerships-events-coordinator/) - Lydia is a Marketing Communications professional with over 20 years of experience within dynamic relationship building and events roles. Across her career she has been instrumental in identifying opportunities to build strong, trusted relationships with dedicated partners. Her love for delivering impactful events was built through playing major roles in developing, delivering and capitalising on overseas
- [Emma Robbins](https://www.mrv.org.au/team-member/emma-robbins/) - Emma Robbins is the National Executive Creative Director at M+C Saatchi AUNZ. She has over 30 years of experience creating work for some of Australia’s biggest and most loved brands, effective behaviour change programs, and guiding communications for large corporations and public sector programs. Emma is a mentor to young women in advertising through The
- [Zoe Austin - Marketing & Communications Manager](https://www.mrv.org.au/team-member/zoe-austin/) - Zoe is an accomplished marketing professional with over 10 years of experience in drivingstrategic initiatives and innovative campaigns within the healthcare sector. She hassuccessfully launched and promoted a diverse portfolio of pharmaceutical products,specialising in women’s health and rare blood disorders. Zoe has successfully navigatedcomplex relationships with healthcare providers, government bodies, and patient advocacygroups to drive
- [Chloe Fast - Observer](https://www.mrv.org.au/team-member/chloe-fast-observer/) - Chloe Fast is the EGM Corporate Affairs, Employer Brand and Sustainability for CAR Group Limited. Chloe has over 13 years of experience working in People/HR roles focused on driving employee engagement, building high performance teams, fostering diverse and inclusive cultures, and supporting organisations through periods of transformational growth and change, before more recently specialising in
- [Melissa Haddad](https://www.mrv.org.au/team-member/melissa-haddad-board-observer/) - Melissa Haddad joined the Board of Maddie Riewoldt’s Vision in 2025. Melissa is a distinguished lawyer at Gilbert + Tobin and has practised in Melbourne, Sydney and Perth. Melissa represents some of Australia’s leading companies and directors in a broad range of complex commercial litigation matters. Melissa graduated with both a Bachelor of Law (First
- [Andrew Yeoland](https://www.mrv.org.au/team-member/andrew-yeoland/) - Board Member Andrew Yeoland is an Executive leader with over 25 years of global experience in general management, strategy, sales & marketing and has successfully led key transformational projects and developed key growth strategies across Europe, Asia, and Australia. Andrew is Chief Executive Officer of FOOTT, a leading regional waste and recycling organisation and Andrew
- [Edward Kemp - Chair](https://www.mrv.org.au/team-member/edward-kemp/) - Chair Edward Kemp is the CEO of Hargo Engineering, a precision CNC manufacturing company that manufactures complex components to extremely tight tolerances in the global aerospace, defence, automotive, security, oil & gas and medical sectors. He has 35 years’ experience across heavy industry and manufacturing, sales and marketing communications and finance. An experienced non‑executive director
- [Amanda Stevens](https://www.mrv.org.au/team-member/amanda-stevens/) - A corporate governance lawyer with over 18 years’ experience, Amanda has held a number of executive leadership roles in federal, state and local government, including three consecutive years as the Mayor of the City of Port Phillip. She is a highly experienced board member serving on numerous boards including chairing the South Melbourne Market for
- [Professor Zoe McQuilten](https://www.mrv.org.au/team-member/professor-zoe-mcquilten/) - Prof Zoe McQuilten is a consultant haematologist at Monash Health and a NHMRC Emerging Leader Fellow at Monash University. She is the Deputy-Director of the Transfusion Research Unit at Monash University and a senior research fellow with the Australian and New Zealand Intensive Care Research Centre (ANZIC-RC). Her other appointments include Chair of the Supportive
- [Dr Pasquale Barbaro](https://www.mrv.org.au/team-member/dr-pasquale-barbaro/) - Dr Pasquale (Paddy) Barbaro is currently a Paediatric Haematologist at the Queensland Children’s Hospital in Brisbane Australia. Pasquale undertook his Haematology training at the Children’s Hospital at Westmead and has worked as a locum Haematologist at both the Children’s Hospital at Westmead and the Royal Children’s Hospital in Melbourne before taking up the position at
- [Dr Duncan Purtill](https://www.mrv.org.au/team-member/dr-duncan-purtill/) - Dr Duncan Purtill is a clinical and laboratory haematologist at Fiona Stanley Hospital, WA. He trained at Royal Perth Hospital and Sir Charles Gairdner Hospital, and undertook fellowships at Hôpital Saint Louis, Paris, and Memorial Sloan Kettering Cancer Centre, New York. His interests are in stem cell transplantation and cellular therapies, and in promoting the
- [Dr Ashleigh Scott](https://www.mrv.org.au/team-member/dr-ashleigh-scott/) - Dr Ashleigh Scott is a clinical/laboratory haematologist and Bone Marrow Transplant (BMT) Physician. He completed dual haematology training in 2016, and is employed as a senior staff specialist BMT Physician at the Royal Brisbane and Women’s Hospital. He is the scientific writer for the ALLG transplantation and cellular therapy working party, a member of the
- [Dr Victoria Ling](https://www.mrv.org.au/team-member/dr-victoria-ling/) - Dr Victoria Ling is a clinical and laboratory Haematologist at the Princess Alexandra Hospital and a post-doctoral research scientist at QIMR Berghofer Medical Research Institute in Brisbane. She is an honorary senior lecturer at the University of Queensland. She completed her haematology training through the Alfred Hospital in Melbourne (2015), prior to gaining her PhD
- [Professor Tony Cesare](https://www.mrv.org.au/team-member/professor-tony-cesare/) - Tony Cesare is an Australian Research Council Future Fellow, Associate Professor in the Faculty of Medicine and Health at the University of Sydney, and head of the Genome Integrity Unit at the Children’s Medical Research Institute (CMRI). He trained as a PhD student at the University of North Carolina at Chapel Hill, as a USA
- [Dr Catherine Carmichael](https://www.mrv.org.au/team-member/dr-catherine-carmichael/) - Dr Catherine Carmichael is a Victorian Cancer Agency Mid-Career Research Fellow and Laboratory Head within the Centre for Cancer Research at the Hudson Institute of Medical Research in Melbourne. She obtained her PhD in 2008 from the University of Melbourne, investigating inherited predispositions to Bone Marrow Failure syndromes and Acute Myeloid Leukaemia (AML). She undertook
- [Austin Kulasekararaj](https://www.mrv.org.au/team-member/austin-kulasekararaj/) - Consultant Haematologist, King’s College Hospital, London, UK Honorary Senior Clinical Lecturer, King’s College London, London, UK Clinical Interests: Aplastic anaemia (AA) and bone marrow failure syndromes, PNH, MDS and myeloid malignancies. Leads the King’s National Paroxysmal Nocturnal Haemoglobinuria service and National AA referral centre @ King’s. Translational Research: Molecular/immunological pathogenesis of MDS and aplastic anaemia,
- [Olivia Farrell](https://www.mrv.org.au/team-member/olivia-farrell/) - Olivia completed a Bachelor of Science (Honours) and Doctor of Medicine at the University of Melbourne. As part of her studies, she dedicated two years to neonatal research at the Murdoch Children’s Research Institute. In her final year of medical school, Olivia’s journey took an unexpected turn when she was diagnosed with Aplastic Anaemia, a
- [Paul Gadomski](https://www.mrv.org.au/team-member/paul-gadomski/) - Board Member Paul Gadomski is the CEO of Cripps Bakeries Tasmania, a privately-owned plant bakery business which is iconic in Tasmania, its heritage dating back to 1878. Cripps produces in excess of 300,000 baked products weekly for the Tasmanian market and employees a culturally diverse workforce in excess of 200 people. He has 25 years’
- [Nick Riewoldt](https://www.mrv.org.au/team-member/nick-riewoldt/) - Board Member Nick is Maddie’s oldest brother. Nick supported Maddie daily through her fight with the Bone Marrow Failure Syndrome, Aplastic Anaemia, and was inspired by her strength and courage. Nick is passionate about delivering on Maddie’s wish of finding a cure as he doesn’t want anyone to endure the suffering Maddie dealt with the
- [Michelle O'Brien](https://www.mrv.org.au/team-member/michelle-obrien/) - Board Member Michelle is a highly experienced finance professional, holding senior and CFO roles in large corporate organisations. She has experience in leading large transformation programs, strategic thinking and providing commercial advice in particular in the retail space. Michelle is a FCPA and holds an MBA from AGSM. Michelle has extensive experience with boards and
- [Meagan Henry - Administration and Operations Co-Ordinator](https://www.mrv.org.au/team-member/meagan-henry-administration-and-operations-co-ordinator/) - Meagan joins Maddie’s Vision with a work history spanning more than 30 years across the finance and not for profit sectors. Appointed as company secretary, her 15 years working in not for profit with majority of those as manager of a local community centre brings experience in office management, governance, finance, and event management. Meagan
- [Amy Coote - Chief Executive Officer](https://www.mrv.org.au/team-member/amy-coote-chief-executive-officer/) - Amy is a For-Purpose executive leader, Founding Executive of one of Australia's leading giving circles and an experienced Board Director. For more than ten years, she has held senior leadership, fundraising and development positions within the For-Purpose sector, which are preceded by over a decade of business development and project leadership roles in the professional

## Ambassadors

- [Rebekah Stott](https://www.mrv.org.au/ambassador/rebekah-stott/) - Rebekah Stott joins the fight against Bone Marrow Failure Syndromes with Maddie Riewoldt's Vision as an official ambassador #FightLikeMaddie
- [Melissa Barbieri](https://www.mrv.org.au/ambassador/melissa-barbieri/) - Melissa Barbieri joins the fight against Bone Marrow Failure Syndromes with Maddie Riewoldt's Vision as an official ambassador #FightLikeMaddie
- [Andy Allen](https://www.mrv.org.au/ambassador/andy-allen/) - Andy Allen joins the fight against Bone Marrow Failure Syndromes with Maddie Riewoldt's Vision as an official ambassador #FightLikeMaddie
- [Alex Fevola](https://www.mrv.org.au/ambassador/alex-fevola/) - Alex Fevola joins the fight against Bone Marrow Failure Syndromes with Maddie Riewoldt's Vision as an official ambassador #FightLikeMaddie
- [Brendan Fevola](https://www.mrv.org.au/ambassador/brendan-fevola/) - Brendan Fevola joins the fight against Bone Marrow Failure Syndromes with Maddie Riewoldt's Vision as an official ambassador #FightLikeMaddie
- [Dee Dee Dunleavy](https://www.mrv.org.au/ambassador/dee-dee-dunleavy/) - Dee Dee Dunleavy joins the fight against Bone Marrow Failure Syndromes with Maddie Riewoldt's Vision as an official ambassador #FightLikeMaddie

## Stories

- [Matt's experience with Severe Aplastic Anaemia](https://www.mrv.org.au/story/matts-experience-with-severe-aplastic-anaemia/) - Read about Matt’s experience with Severe Aplastic Anaemia story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Luci’s journey with Severe Aplastic Anaemia](https://www.mrv.org.au/story/lucis-experience-with-severe-aplastic-anaemia/) - Read about Luci’s journey with Severe Aplastic Anaemia story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Thomas's Story: a family united in the fight against Aplastic Anaemia](https://www.mrv.org.au/story/thomass-journey-with-aplastic-anaemia/) - Read about Thomas’s Story: a family united in the fight against Aplastic Anaemia story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Brenda’s courage in the face of unimaginable loss](https://www.mrv.org.au/story/brendas-courage-in-the-face-of-unimaginable-loss/) - Read about Brenda’s courage in the face of unimaginable loss story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Help change the future for children like Tae](https://www.mrv.org.au/story/help-change-the-future-for-children-like-tae/) - Read about Help change the future for children like Tae story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Olivia's experience with Aplastic Anaemia](https://www.mrv.org.au/story/olivias-experience-with-aplastic-anaemia/) - Read about Olivia’s experience with Aplastic Anaemia story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Zak](https://www.mrv.org.au/story/zak/) - Read about Zak story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Lily's experience with Severe Aplastic Anaemia](https://www.mrv.org.au/story/lilys-story-with-severe-aplastic-anaemia/) - Read about Lily’s experience with Severe Aplastic Anaemia story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Zahra's Journey with Myelodysplastic Syndromes](https://www.mrv.org.au/story/zahras-journey-with-myelodyplastic-syndrome/) - Read about Zahra’s Journey with Myelodysplastic Syndromes story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Joel's experience with Aplastic Anaemia](https://www.mrv.org.au/story/joels-experience-with-aplastic-anaemia/) - Read about Joel’s experience with Aplastic Anaemia story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [DJ's experience with Severe Aplastic Anaemia](https://www.mrv.org.au/story/djs-experience-with-severe-aplastic-anaemia/) - Read about DJ’s experience with Severe Aplastic Anaemia story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Dr Jessica Lake](https://www.mrv.org.au/story/haematopoiesis-or-blood-poetry/) - Read about Dr Jessica Lake story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Roxanne](https://www.mrv.org.au/story/roxanne/) - Read about Roxanne story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Jack and Hannah's story with Aplastic Anaemia](https://www.mrv.org.au/story/jack-and-hannahs-story-with-aplastic-anaemia/) - Read about Jack and Hannah’s story with Aplastic Anaemia story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Evgenia's Story](https://www.mrv.org.au/story/evgenia-story/) - Read about Evgenia’s Story story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Rob](https://www.mrv.org.au/story/rob/) - Read about Rob story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Kayla](https://www.mrv.org.au/story/kayla/) - Read about Kayla story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Nick](https://www.mrv.org.au/story/nick/) - Read about Nick story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Matty & Cheryll](https://www.mrv.org.au/story/matty-cheryll/) - Read about Matty & Cheryll story and the support Maddie's Vision is providing. Support Maddie's Vision today!
- [Carter & Skye](https://www.mrv.org.au/story/carter-skye/) - Read about Carter & Skye story and the support Maddie's Vision is providing. Support Maddie's Vision today!

## Research Projects

- [Harnessing Somatic Genetic Rescue for Gene Discovery and Novel Avenues of Therapy in Inherited Bone Marrow Failure ](https://www.mrv.org.au/research-project/harnessing-somatic-genetic-rescue-for-gene-discovery-and-novel-avenues-of-therapy-in-inherited-bone-marrow-failure/) - 2026–2029 (General Fellowship): Harnessing Somatic Genetic Rescue for Gene Discovery and Novel Avenues of Therapy in Inherited Bone Marrow Failure. Dr Parvathy Venugopal, Adelaide University. Inherited Bone Marrow Failure Syndromes prevent the body from producing enough healthy blood cells, which can cause anaemia, infections and bleeding disorders, as well as an increased risk of blood cancer. These
- [From Genetic Diagnosis to Gene Editing Therapy for Telomerase RNA–Related Bone Marrow Failure ](https://www.mrv.org.au/research-project/from-genetic-diagnosis-to-gene-editing-therapy-for-telomerase-rna-related-bone-marrow-failure/) - 2026–2029 (General Fellowship): From Genetic Diagnosis to Gene Editing Therapy for Telomerase RNA–Related Bone Marrow Failure. Dr Ashley Yang, Children’s Medical Research Institute. Telomeres are protective structures at the ends of chromosomes. They help maintain cell health and function, particularly in rapidly dividing cells such as blood-forming stem cells. Changes in genes that maintain telomeres can lead to Telomere
- [Marrow Matters: Developing and Evaluating a Nurse Practitioner-Led Model of Care for Severe Aplastic Anaemia ](https://www.mrv.org.au/research-project/marrow-matters-developing-and-evaluating-a-nurse-practitioner-led-model-of-care-for-severe-aplastic-anaemia/) - 2026–2029 (Fiona Riewoldt Nursing and Allied Health Fellowship): Marrow Matters: Developing and evaluating a Nurse Practitioner-led model of care to improve clinical outcomes and patient and family-centred care for Severe Aplastic Anaemia. Maddie Gilsenan, Murdoch Children’s Research Institute and the Children’s Cancer Centre at The Royal Children’s Hospital Melbourne. Severe Aplastic Anaemia is a rare and life-threatening
- [Developing Translational Insights into Poor Graft Function Following Allogeneic Stem Cell Transplantation ](https://www.mrv.org.au/research-project/developing-translational-insights-into-poor-graft-function-following-allogeneic-stem-cell-transplantation/) - 2025–2028 | Dr Daniel North Allogeneic stem cell transplantation is an important treatment for many blood disorders, including Bone Marrow Failure Syndromes. It involves giving a patient healthy blood-forming stem cells from a donor, with the aim of helping the body make healthy blood cells again. Poor graft function is a serious complication that can
- [Improving capability and capacity of nurses to assess and manage young people with symptoms associated with acquired and inherited bone marrow failure syndromes. ](https://www.mrv.org.au/research-project/improving-capability-and-capacity-of-nurses-to-assess-and-manage-young-people-with-symptoms-associated-with-acquired-and-inherited-bone-marrow-failure-syndromes/) - 2022-2024 (Fiona Riewoldt Nursing/Allied Health Fellowship): Improving capability and capacity of nurses to assess and manage young people with symptoms associated with acquired and inherited bone marrow failure syndromes. Rachel Penny, Clinical Nurse Consultant, Oncology Services Group, Queensland Children’s Hospital. As a clinical nurse consultant in haematology and bone marrow transplantation, Rachel Edwards has seen first-hand
- [Evaluating Multidisciplinary Bone Marrow Failure Syndrome Care – a prospective observational clinical trial offering comprehensive diagnostic genomic evaluation, multidisciplinary case review and multidisciplinary clinical care](https://www.mrv.org.au/research-project/evaluating-multidisciplinary-bone-marrow-failure-syndrome-care-a-prospective-observational-clinical-trial-offering-comprehensive-diagnostic-genomic-evaluation-multidisciplinary-case-review/) - 2020-2023 (Grant): Evaluating Multidisciplinary Bone Marrow Failure Syndrome Care – a prospective observational clinical trial offering comprehensive diagnostic genomic evaluation, multidisciplinary case review and multidisciplinary clinical care. One of the most important initial steps in treating patients with bone marrow failure is getting the right diagnosis. In patients that are suspected to have an inherited
- [Discovery of novel niche factors to improve long-term stem cell transplantation in Bone Marrow Failure Syndromes. ](https://www.mrv.org.au/research-project/discovery-of-novel-niche-factors-to-improve-long-term-stem-cell-transplantation-in-bone-marrow-failure-syndromes/) - 2023- 2025 (Fellowship): Discovery of novel niche factors to improve long-term stem cell transplantation in bone marrow failure syndromes. Dr Vashe Chandrakanthan, The University of Adelaide. For many patients with Bone Marrow Failure Syndromes, a bone marrow transplant is the only hope for a cure. However, for a transplant to be effective the transplanted stem cells
- [Outcomes of Haematopoietic Stem Cell Transplantation for Paediatric Patients with Severe Aplastic Anaemia (SAA) and Bone Marrow Failure (BMF) Syndromes.](https://www.mrv.org.au/research-project/outcomes-of-haematopoietic-stem-cell-transplantation-for-paediatric-patients-with-severe-aplastic-anaemia-saa-and-bone-marrow-failure-bmf-syndromes/) - 2021-2022 (Grant-in-Aid): Outcomes of Haematopoietic Stem Cell Transplantation for Paediatric Patients with Severe Aplastic Anaemia (SAA) and Bone Marrow Failure (BMF) Syndromes. Dr Steven Keogh, Australasian Bone Marrow Transplant Recipient Registry (AMBTRR), St Vincent’s Hospital Sydney. The ABMTRR has collected data on paediatric stem cell transplants since 1992. It is important the data focussed on paediatric
- [Improving outcomes for Australian patients and families with bone marrow failure related diseases through comprehensive clinicogenomic care and collaborative research.](https://www.mrv.org.au/research-project/improving-outcomes-for-australian-patients-and-families-with-bone-marrow-failure-related-diseases-through-comprehensive-clinicogenomic-care-and-collaborative-research/) - 2021-2024 (Fellowship): Improving outcomes for Australian patients and families with bone marrow failure related diseases through comprehensive clinicogenomic care and collaborative research. Dr Lucy Fox, Peter MacCallum Cancer Centre. Dr Lucy Fox is the Bone Marrow Failure Fellow at the Victorian Comprehensive Cancer Centre and the Clinical Research Fellow at the Aplastic Anaemia Registry (AAR). Her
- [Curation of the DIAAMOND-based Aplastic Anaemia Biobank](https://www.mrv.org.au/research-project/curation-of-the-diaamond-based-aplastic-anaemia-biobank/) - 2021-2023 (Grant-in-Aid): Curation of the DIAAMOND-based Aplastic Anaemia Biobank. Associate Professor Stephen Ting, Monash University. This project (the DIAAMOND biobank) is a sub-study of the DIAAMOND clinical trial and will collect, process and store patient blood and bone marrow samples from patients involved in DIAAMOND so they can be stored for future studies of the causes,
- [The RESELECT Trial - REscuing bone marrow function in patients with relapsed aplaStic anaEmia and/or bone marrow failure post aLlogeneic stEm Cell Transplantation](https://www.mrv.org.au/research-project/the-reselect-trial-rescuing-bone-marrow-function-in-patients-with-relapsed-aplastic-anaemia-and-or-bone-marrow-failure-post-allogeneic-stem-cell-transplantation/) - 2020-2024 (Grant): Rescuing bone marrow function in relapsed acquired Aplastic Anaemia and /or poor graft function post allogeneic bone marrow transplantation, Professor David Ritchie, Melbourne Health. Clinical trials are important for the testing of new treatments in disease. Clinical trials also can be used to collect patient samples to understand why treatments work or why
- [The Australian Bone Marrow Failure Biobank](https://www.mrv.org.au/research-project/the-australian-bone-marrow-failure-biobank/) - 2020-2025 (Grant): The Australian Bone Marrow Failure Biobank. Professor Melissa Southey, Biobanking Victoria, Monash University. The establishment of the Australian Marrow Failure Biobank, led by Maddie Riewoldt’s Vision, is a collaboration between Maddie’s Vision, Monash University Transfusion Research Unit and Biobanking Victoria. A biobank is a collection of stored patient samples which is utilised for further
- [Novel immunological assessment of Aplastic Anaemia and post transplant Graft Dysfunction for the purposes of targeted therapeutic intervention.  ](https://www.mrv.org.au/research-project/novel-immunological-assessment-of-aplastic-anaemia-and-post-transplant-graft-dysfunction-for-the-purposes-of-targeted-therapeutic-intervention/) - 2019-2023 (Co-funded VCA/Maddie Riewoldt's Vision International Travelling Fellowship): Novel immunological assessment of Aplastic Anaemia and post transplant Graft Dysfunction for the purposes of targeted therapeutic intervention. Dr Ashvind Prabahran, Melbourne Health. Aplastic Anaemia results from the immune system attacking the bone marrow spontaneously. Poor Graft Function (PGF) refers to a type of bone marrow failure that
- [Clinical genomic and molecular determinants of outcome in patients with Bone Marrow Failure Syndromes](https://www.mrv.org.au/research-project/clinical-genomic-and-molecular-determinants-of-outcome-in-patients-with-bone-marrow-failure-syndromes/) - 2018-2021 (Doctoral Degree Fellowship): Clinical, genomic and molecular determinants of outcome in patients with Bone Marrow Failure Syndromes, Dr Lucy Fox, The University of Melbourne. This project is the first scholarship in Australia to support a dedicated Doctor of Medical Science scholar to focus on describing, understanding and improving diagnosis of Bone Marrow Failure Syndromes
- [Identification of microRNA biomarkers predictive of clinical outcomes in Aplastic Anaemia and Myelodysplastic Syndrome](https://www.mrv.org.au/research-project/identification-of-mirna-biomarkers-which-play-a-functional-role-in-disease-pathogenesis-and-are-predictive-of-inferior-outcomes-in-aa-mds/) - 2016 – 2019 (Grant-in-Aid) Identification of microRNA biomarkers predictive of clinical outcomes in Aplastic Anaemia and Myelodysplastic Syndrome, Dr Lynette Chee, Melbourne Health. DNA is the genetic material which provides the information that determines human characteristics, like the colour of our eyes and hair. RNA is another genetic material related to DNA and also influences
- [Aplastic Anaemia Registry (AAR) and the Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry](https://www.mrv.org.au/research-project/aplastic-anaemia-registry-aar-and-the-aplastic-anaemia-and-other-bone-marrow-failure-syndromes-registry/) - 2015-ongoing: The Australian Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry, Transfusion Research Unit, Monash University. The Aplastic Anaemia Registry (AAR), established in 2012, is a collaboration between the Transfusion Research Unit in Monash University’s Department of Public Health and Preventive Medicine and partner hospitals, clinicians and patients. Information regarding patient background, treatment and subsequent
- [Precision gene editing for the treatment of Fanconi Anaemia. ](https://www.mrv.org.au/research-project/precision-gene-editing-for-the-treatment-of-fanconi-anaemia/) - 2021-2024 (Grant-in-Aid): Precision gene editing for the treatment of Fanconi Anaemia. Dr Lorna McLeman, St Vincent’s Institute of Medical Research. Fanconi Anaemia is the most common cause of inherited bone marrow failure with a median onset of only eight years of age. Bone marrow failure is fatal in Fanconi Anaemia except for one life saving
- [Steps toward generating new molecular therapies for Bone Marrow Failure Syndromes](https://www.mrv.org.au/research-project/steps-toward-generating-new-molecular-therapies-for-bone-marrow-failure-syndromes/) - 2020 - 2024 (Alex Gadomski Scholarship): Steps toward generating new molecular therapies for Bone Marrow Failure Syndromes, Ariel Simpson, Menzies Institute for Medical Research and University of Tasmania. The only established treatment for Bone Marrow Failure Syndromes is a bone marrow transplant, which has a high risk of complications. Patients with inherited bone marrow failure
- [Modelling consequences of cell abundance, heterogeneity and origin for autologous cell therapy in genetic Bone Marrow Failure Syndromes.](https://www.mrv.org.au/research-project/modelling-consequences-of-cell-abundance-heterogeneity-and-origin-for-autologous-cell-therapy-in-genetic-bone-marrow-failure-syndromes/) - 2020-2023 (Fellowship): Modelling consequences of cell abundance, heterogeneity and origin for autologous cell therapy in genetic Bone Marrow Failure Syndromes. Dr Parvathy Venugopal, Centre for Cancer Biology / University of South Australia. In some people with inherited bone marrow failure, a small number of cells naturally undergo ‘spontaneous reversion’ – the correction of the genetic
- [Functional interrogation of Loci associated with the regulation of haematopoiesis](https://www.mrv.org.au/research-project/functional-interrogation-of-loci-associated-with-the-regulation-of-haematopoiesis/) - 2019-2021 (Fellowship): The Alex Gadomski Fellowship. Functional interrogation of Loci associated with the regulation of haematopoiesis. Dr Kirsten Fairfax, Menzies Institute for Medical Research and University of Tasmania. To understand bone marrow failure and identify new treatments, detailed knowledge on how different types of blood cells are formed is essential. This work aimed to answer
- [Using induced pluripotent stem cells to find causes and cures for bone marrow failure in children and young adults](https://www.mrv.org.au/research-project/using-induced-pluripotent-stem-cells-to-find-causes-and-cures-for-bone-marrow-failure-in-children-and-young-adults/) - 2018-2023 (Grant-in-Aid): Using induced pluripotent stem cells to find causes and cures for bone marrow failure in children and young adults. Professor Andrew Elefanty, Murdoch Children’s Research Institute. Bone Marrow Failure Syndromes may be caused by inherited mutations. In cases where mutated genes are not identified, it is believed that an abnormal immune system is
- [Novel blood biomarkers for predicting bone marrow failure in Myeloproliferative neoplasms. ](https://www.mrv.org.au/research-project/novel-blood-biomarkers-for-predicting-bone-marrow-failure-in-myeloproliferative-neoplasms/) - 2019-2023 (co-funded Snowdome/Gunn Family/Maddie Riewoldt’s Vision) The Gunn Family National Fellowship for Career Development in Research – Women in Haematology. Novel blood biomarkers for predicting bone marrow failure in Myeloproliferative neoplasms. Dr Belinda Guo, University of Western Australia. Myeloproliferative neoplasms (MPN) are a group of bone marrow cancers where there is an overproduction of blood
- [Identifying therapeutics which can be repurposed for the treatment of Myelodysplastic Syndromes and other bone marrow failure disorders.](https://www.mrv.org.au/research-project/identifying-therapeutics-which-can-be-repurposed-for-the-treatment-of-myelodysplastic-syndromes-and-other-bone-marrow-failure-disorders/) - 2018-2021 (Grant-in-Aid): Identifying therapeutics which can be repurposed for the treatment of Myelodysplastic Syndromes and other bone marrow failure disorders. Associate Professor Amee George, The Australian National University. There are currently limited treatment options for patients with Bone Marrow Failure Syndromes. This study aims to identify known drugs that could be repurposed to treat Diamond
- [Predicting malignant transformation of Bone Marrow Failure Syndromes using longitudinal targeted sequencing of peripheral blood and cell-free DNA (cfDNA).](https://www.mrv.org.au/research-project/predicting-malignant-transformation-of-bone-marrow-failure-syndromes-using-longitudinal-targeted-sequencing-of-peripheral-blood-and-cell-free-dna-cfdna/) - 2018-2020 (Grant-in-Aid): Predicting malignant transformation of Bone Marrow Failure Syndromes using longitudinal targeted sequencing of peripheral blood and cell-free DNA (cfDNA). Associate Professor Piers Blombery, Peter MacCallum Cancer Centre. Aplastic Anaemia occurs when the body stops producing enough new blood cells. Some of these patients may respond to immunosuppressive therapy or bone marrow transplant, and
- [Genome editing of haematopoietic stem and progenitor cells to uncover novel therapeutics for Aplastic Anaemia and other Bone Marrow Failure Syndromes. ](https://www.mrv.org.au/research-project/genome-editing-of-haematopoietic-stem-and-progenitor-cells-to-uncover-novel-therapeutics-for-aplastic-anaemia-and-other-bone-marrow-failure-syndromes/) - 2017-2021 Flavorite Fellowship, Genome editing of haematopoietic stem and progenitor cells to uncover novel therapeutics for Aplastic Anaemia and other Bone Marrow Failure Syndromes, Dr Yih-Chih Chan, The University of Melbourne and Peter MacCallum Cancer Centre Aplastic Anaemia occurs when the body stops producing enough new blood cells. In about half of Aplastic Anaemia patients,
- [Towards targeted treatments for Fanconi Anaemia ](https://www.mrv.org.au/research-project/towards-targeted-treatments-for-fanconi-anaemia/) - 2017 - 2019 Fellowship / 2017 Grant-in-Aid, Towards targeted treatments for Fanconi Anaemia, Associate Professor Wayne Crismani, St Vincents Institute for Medical Research Fanconi Anaemia is an inherited disorder which can lead to bone marrow failure, acute myeloid leukaemia and cancer. Fanconi Anaemia is a DNA repair disorder caused by the inability for the DNA
- [Establishing an in vivo humanised mouse model for telomere related bone marrow failure syndromes.](https://www.mrv.org.au/research-project/establishing-an-in-vivo-humanised-mouse-model-for-telomere-related-bone-marrow-failure-syndromes/) - 2019-2021 (Grant-in-Aid): Establishing an in vivo humanised mouse model for telomere related Bone Marrow Failure Syndromes. Professor Tracy Bryan, Children’s Medical Research Institute. Human genetic information is packaged into discrete bundles (chromosomes) that have protective caps on their ends, known as ‘telomeres’. The integrity of telomeres is vitally important for cells to continue to divide.
- [Dissecting immune dysregulation in acquired bone marrow failure syndromes to identify new therapeutic leads. ](https://www.mrv.org.au/research-project/dissecting-immune-dysregulation-in-acquired-bone-marrow-failure-syndromes-to-identify-new-therapeutic-leads/) - 2022-2025 (Fellowship): Dissecting immune dysregulation in acquired Bone Marrow Failure Syndromes to identify new therapeutic leads. Associate Professor Rachel Koldej, ACRF Translational Research Laboratory, Melbourne Health. Bone Marrow Failure Syndromes are a group of disorders where low white blood cell and platelet counts lead to increased risk of infection and bleeding. With an overall mortality
- [Using whole genome sequence analysis to find answers for unsolved cases of inherited Bone Marrow Failure Syndrome (iBMFS).](https://www.mrv.org.au/research-project/using-whole-genome-sequence-analysis-to-find-answers-for-unsolved-cases-of-inherited-bone-marrow-failure-syndrome/) - 2020-2022 (Grant-in-Aid): Using whole genome sequence analysis to find answers for unsolved cases of inherited Bone marrow Failure Syndrome. Associate Professor Piers Blombery, The University of Melbourne. Inherited Bone Marrow Failure Syndromes (IBMFS) are a type of genetic blood disorder inherited within a family. The most successful ‘cure’ for inherited Bone Marrow Failure Syndrome is
- [Microenvironmental determinants of Aplastic Anaemia progression to MDS / AML.](https://www.mrv.org.au/research-project/microenvironmental-determinants-of-aplastic-anaemia-progression-to-mds-aml/) - 2019-2021 (Grant-in-Aid): Microenvironmental determinants of Aplastic Anaemia progression to MDS / AML. Associate Professor Rachel Koldej, ACRF Translational Research Laboratory, Melbourne Health. Aplastic Anaemia is a disorder where the body stops producing enough new blood cells. Approximately 15% of Aplastic Anaemia patients are also at risk of progressing to Myelodysplasia or Acute Myeloid Leukaemia (MDS/AML)
- [Utility of a neurobehavioural assessment for treatment planning, educational, and family support for children undergoing bone marrow transplant for non-malignant disease. ](https://www.mrv.org.au/research-project/utility-of-a-neurobehavioural-assessment-for-treatment-planning-educational-and-family-support-for-children-undergoing-bone-marrow-transplant-for-non-malignant-disease/) - 2023-2025 (Fiona Riewoldt Nursing/Allied Health Fellowship): Utility of a neurobehavioural assessment for treatment planning, educational, and family support for children undergoing bone marrow transplant for non-malignant disease. Alice Maier, The Royal Children’s Hospital. Bone marrow transplantation is increasingly being offered as a cure for children with bone marrow failure syndromes and other non-malignant conditions. A bone marrow
- [A preclinical trial of next generation gene editing for the prevention of bone marrow failure in Fanconi Anaemia](https://www.mrv.org.au/research-project/a-preclinical-trial-of-next-generation-gene-editing-for-the-prevention-of-bone-marrow-failure-in-fanconi-anaemia/) - 2023- 2025 (Fellowship): The inaugural Captain Courageous Fellowship. A preclinical trial of next generation gene editing for the prevention of bone marrow failure in Fanconi Anaemia. Dr Astrid Glaser at the Genome Stability Unit of St Vincent’s Institute for Medical Research. This research aims to provide an alternative treatment to Fanconi Anaemia, a serious genetic disorder that
- [Discovering new genes and mutations that cause failure of bone marrow neutrophil production. ](https://www.mrv.org.au/research-project/discovering-new-genes-and-mutations-that-cause-failure-of-bone-marrow-neutrophil-production/) - 2018-2020 (Grant in aid): Discovering new genes and mutations that cause failure of bone marrow neutrophil production. Professor Graham Lieschke, Australian Regenerative Medicine Institute/Monash University and The Royal Melbourne Hospital. White blood cells come in many shapes and types. A failure to make white blood cells leads to the recurrent infections that are problematic for Bone
- [Influences of clonal haematopoiesis in allogeneic bone marrow transplantation.](https://www.mrv.org.au/research-project/influences-of-clonal-haematopoiesis-in-allogeneic-bone-marrow-transplantation/) - 2018-2020 (Grant in aid): Influences of clonal haematopoiesis in allogeneic bone marrow transplantation. Dr Paul Yeh and Professor Mark Dawson, The University of Melbourne. Dr Paul Yeh’s research focusses on using genetic testing to study clonal haematopoiesis (CH) and howit influences therapies in bone marrow failure. CH is a phenomenon that occurs when a genetic mutation

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